慢性疼痛自我管理的数字健康干预措施的患者体验：系统评价与主题综合方案

Patients' Experiences of Digital Health Interventions for the Self-Management of Chronic Pain: Protocol for a Systematic Review and Thematic Synthesis.

作者信息

Main Ashleigh, McCartney Haruno, Ibrar Maryam, Rai Harleen Kaur, Muirhead Fiona, Mavroeidi Alexandra, Maguire Roma

机构信息

Department of Computer and Information Sciences, University of Strathclyde, Glasgow, United Kingdom.

Physical Activity for Health, School of Psychological Sciences and Health, University of Strathclyde, Glasgow, United Kingdom.

出版信息

JMIR Res Protoc. 2024 Mar 7;13:e52469. doi: 10.2196/52469.

DOI:10.2196/52469

PMID:38451694

原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10958340/

Abstract

BACKGROUND

Chronic pain is a highly prevalent condition that requires multidisciplinary treatment. However, in the United Kingdom, access to specialist pain clinics where patients can receive medical multidisciplinary treatment is limited, and provision varies between health boards. As such, self-management of chronic pain using digital tools has been gaining traction recently, but evidence of its effectiveness from clinical-based trials focuses mainly on quantitative outcomes.

OBJECTIVE

This systematic review aims to identify, appraise, and synthesize qualitative evidence on patients' experiences with digital health interventions (DHIs) for the management of chronic pain.

METHODS

This systematic review will consider qualitative and mixed methods studies that explore the experience of patients (aged 18 years and older) with chronic pain engaging in DHIs to manage their pain. MEDLINE Ovid, PubMed, Embase, CINAHL, PsycINFO, and Scopus databases will be searched for published studies. The systematic review will be conducted in accordance with the ENTREQ (Enhancing Transparency in Reporting the Synthesis of Qualitative Research) guidelines. Following the 3-step thematic synthesis methodology of Thomas and Harden, titles and abstracts will be screened by 2 independent reviewers (AM and HM), and a third reviewer (MI or FM) will resolve any conflict that arises before the full-text screening. The Critical Appraisal Skills Programme checklist tool will be used to critically appraise the included studies. The extracted data will be imported to NVivo (QSR International), where thematic synthesis will be used to derive analytical themes from the included studies.

RESULTS

Themes that encapsulate the patient experience will be identified from qualitative evidence, and these themes will shed light on the perceived benefits and disadvantages, usability, acceptability, and the overall impact digital tools can have on the lives of those with chronic pain.

CONCLUSIONS

This systematic review will identify, appraise, and synthesize the overall experience of patients engaging in DHI to manage a diverse range of chronic pain conditions. By elaborating the patient experience through qualitative analysis, the findings from this review will enhance our current understanding of the experiences of patients with chronic pain using digital tools for the self-management of their pain and highlight what person-centered elements are essential for future DHI development.

TRIAL REGISTRATION

PROSPERO CRD42023445100; http://tinyurl.com/4z77khfs.

INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): DERR1-10.2196/52469.

摘要

背景

慢性疼痛是一种非常普遍的疾病，需要多学科治疗。然而，在英国，患者能够接受医学多学科治疗的专科疼痛诊所数量有限，且不同卫生委员会之间的服务提供情况存在差异。因此，使用数字工具进行慢性疼痛的自我管理最近越来越受到关注，但基于临床试验的有效性证据主要集中在定量结果上。

目的

本系统评价旨在识别、评估和综合关于患者使用数字健康干预措施（DHI）管理慢性疼痛体验的定性证据。

方法

本系统评价将纳入探索慢性疼痛患者（18岁及以上）参与DHI管理疼痛体验的定性和混合方法研究。将检索MEDLINE Ovid、PubMed、Embase、CINAHL、PsycINFO和Scopus数据库中的已发表研究。本系统评价将按照ENTREQ（提高定性研究综合报告透明度）指南进行。按照Thomas和Harden的三步主题综合方法，由两名独立评审员（AM和HM）筛选标题和摘要，第三位评审员（MI或FM）将在全文筛选前解决出现的任何冲突。将使用批判性评估技能计划清单工具对纳入的研究进行批判性评估。提取的数据将导入NVivo（QSR International），在那里将使用主题综合从纳入的研究中得出分析主题。