Mahmod Ahmdelmukashfi M Elmustfa A Azem, Koko Shima Hassan Mohammed
Faculty of Medicine and Health Sciences, Red Sea University, Port Sudan.
Faculty of Pharmacy, University of Khartoum, Khartoum, Sudan.
Ann Med Surg (Lond). 2024 Jan 11;86(3):1606-1612. doi: 10.1097/MS9.0000000000001704. eCollection 2024 Mar.
Congenital heart disease (CHD) is a gross structural abnormality of the heart that has functional significance. The impact of CHD on the patients' quality of life (QOL) is a topic of considerable interest and importance to both researchers and clinician. However, there is a lack of systematic reviews investigating and identifying the QOL of congenital heart disease patients.
To assess the QOL of adult patients with congenital heart disease by reviewing the previous studies conducted on this subject.
The PubMed and Google Scholar databases were explored for studies published between 2020 and 2022. The keywords used for the searching process included "QOL, Adults, CHD, Outcomes, Impact, Effects, Life of CHD Patients." The inclusion criteria were original English articles and full-text articles conducted on adult patients with congenital heart disease and reported quality of life.
A total of 5455 articles were obtained, but only seven articles were eligible for the inclusion criteria. The included studies involved a total of 8549 participants; 104 were healthy, and 8445 were adult patients with congenital heart disease. The investigated items of the studies included quality of life, health-related QOL, including physical and psychological dimensions, sense of coherence, mental health, physical functioning, physiological wellbeing, psychological resilience, anxiety, depression, illness perception, and health status.
Patients with congenital heart disease experience low QOL across all dimensions. The risk factors for poor QOL included age, depression, anxiety, and female gender.
先天性心脏病（CHD）是一种具有功能意义的心脏结构严重异常。先天性心脏病对患者生活质量（QOL）的影响是研究人员和临床医生都相当感兴趣且重要的话题。然而，缺乏对先天性心脏病患者生活质量进行调查和识别的系统评价。
通过回顾此前关于该主题的研究，评估成年先天性心脏病患者的生活质量。
在PubMed和谷歌学术数据库中检索2020年至2022年发表的研究。检索过程中使用的关键词包括“生活质量、成年人、先天性心脏病、结局、影响、作用、先天性心脏病患者的生活”。纳入标准为关于成年先天性心脏病患者且报告了生活质量的英文原创文章和全文文章。
共获得5455篇文章，但只有7篇文章符合纳入标准。纳入的研究共涉及8549名参与者；104名健康，8445名成年先天性心脏病患者。研究调查的项目包括生活质量、与健康相关的生活质量，包括身体和心理维度、连贯感、心理健康、身体功能、生理健康、心理复原力、焦虑、抑郁、疾病认知和健康状况。
先天性心脏病患者在各个维度的生活质量都较低。生活质量差的风险因素包括年龄、抑郁、焦虑和女性性别。
