Giannini Andrew Theodore, Leong Megan, Chan Kelvin, Ghaltaei Arman, Graham Eden, Robinson Craig, Skorska Malvina N, Cross Andrea, Gabison Sharon
Department of Physical Therapy, University of Toronto, Toronto, Ontario, Canada.
Child & Youth Psychiatry, Centre for Addiction and Mental Health, Toronto, Ontario, Canada.
Physiother Can. 2024 Mar 6;76(1):64-77. doi: 10.3138/ptc-2021-0057. eCollection 2024 Feb.
Engaging patients, families, caregivers, and the community (PFCCs) throughout the research cycle ensures that research is meaningful for the target population. Although tools have been developed to promote PFCC engagement, many are lengthy, complex, and lack recommended behaviours. This study evaluated the sensibility of an infographic and accompanying planning guide for facilitating engagement of PFCCs in research.
Thirteen rehabilitation researchers reviewed the PFCC engagement tool and planning guide, participated in a semi-structured interview, and completed a 10-item sensibility questionnaire. Interviews were transcribed, imported into NVivo, and analyzed using direct content analysis. Median scores and proportions of responses for each of the 10 items in the questionnaire were calculated.
Median scores for all questionnaire items were ≥ 4 on a 7-point Likert Scale. Participants reported the tool was easy to navigate, contained relevant items to promote PFCC engagement, and followed a logical sequence. Suggested modifications of the tool related to formatting, design, and changing the title.
The tool was deemed sensible for overt format, purpose and framework, face and content validity, and ease of usage and provides guidance to engage PFCCs across the research cycle. Further studies are recommended to assess the effectiveness of the tool to engage PFCCs in research.
在整个研究周期中让患者、家属、护理人员和社区（PFCC）参与进来，可确保研究对目标人群具有意义。尽管已开发出促进PFCC参与的工具，但许多工具冗长、复杂且缺乏推荐行为。本研究评估了一份信息图表及配套规划指南在促进PFCC参与研究方面的合理性。
13名康复研究人员对PFCC参与工具和规划指南进行了审查，参与了半结构化访谈，并完成了一份包含10个项目的合理性问卷。访谈内容被转录，导入NVivo，并采用直接内容分析法进行分析。计算问卷中10个项目各自的中位数得分和回答比例。
在7分制李克特量表上，所有问卷项目的中位数得分均≥4。参与者报告称该工具易于操作，包含促进PFCC参与的相关项目，并遵循逻辑顺序。建议对工具在格式、设计和更改标题方面进行修改。
该工具在公开格式、目的和框架、表面和内容效度以及易用性方面被认为是合理的，并为在整个研究周期中让PFCC参与提供了指导。建议进一步开展研究，以评估该工具在让PFCC参与研究方面的有效性
