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为脑瘫儿童制定包容性舞蹈指南:一个共同设计过程和初步可行性研究

Developing an Inclusive Dance Guide for Children With Cerebral Palsy: A Co-Design Process and Initial Feasibility Study.

作者信息

Duarte Machado Eduardo, Miller Laura, Nicholas Joanna, Cross Joanne, Orr Rhyannon, Cole Michael H

机构信息

Development and Disability Over the Lifespan, Healthy Brain and Mind Research Centre, Australian Catholic University, Brisbane, Australia.

Faculty of Health Science, School of Allied Health, Australian Catholic University, Brisbane, Australia.

出版信息

Health Expect. 2025 Jun;28(3):e70304. doi: 10.1111/hex.70304.

DOI:10.1111/hex.70304
PMID:40432276
Abstract

BACKGROUND

Participation in community activities has shown positive outcomes for all children, yet those with cerebral palsy (CP) still experience varying levels of inclusion. This study aimed to address the challenges faced by families of children with CP in accessing community-based dance classes by co-designing a practical guide to support their inclusion.

DESIGN

The guide was developed through a collaborative process involving academic researchers, dance professionals, therapists and families of children with CP. The co-design phase was guided by the International Association for Public Participation (IAP2), workshops were conducted with 11 research partners, including two parents of children with CP, two community dance teachers, two therapists with experience in dance interventions and five academic researchers. Feedback from 'Dance Teacher Reviewers' who were not involved in the co-design was also incorporated to support the guide's initial feasibility.

RESULTS

The collaborative efforts resulted in an evidence-based guide shaped by lived experiences. It provides actionable strategies to implement inclusive dance approaches effectively, supporting the inclusion of children with CP in community dance settings.

CONCLUSION

The co-designed guide represents a significant step toward facilitating inclusive dance classes for children with CP. Future research should explore the guide's effectiveness and feasibility of implementation across various community settings to ensure its broader applicability and impact.

PATIENT OR PUBLIC CONTRIBUTION

Parents of children with CP, dance teachers and therapists actively contributed to all stages of this study, from public consultation to collaborative co-design workshops, decision-making, review and refinement of the guide.

摘要

背景

参与社区活动对所有儿童都有积极影响,但脑瘫(CP)儿童的融入程度仍各不相同。本研究旨在通过共同设计一份实用指南来支持脑瘫儿童家庭融入社区舞蹈课程,以应对他们所面临的挑战。

设计

该指南是通过一个合作过程制定的,参与人员包括学术研究人员、舞蹈专业人士、治疗师以及脑瘫儿童家庭。共同设计阶段以国际公众参与协会(IAP2)为指导,与11个研究伙伴开展了研讨会,其中包括两名脑瘫儿童的家长、两名社区舞蹈教师、两名有舞蹈干预经验的治疗师以及五名学术研究人员。还纳入了未参与共同设计的“舞蹈教师评审员”的反馈意见,以支持该指南初步的可行性。

结果

通过共同努力,形成了一份基于实际经验的指南。它提供了切实可行的策略,以有效地实施包容性舞蹈教学方法,支持脑瘫儿童融入社区舞蹈环境。

结论

共同设计的指南是朝着为脑瘫儿童提供包容性舞蹈课程迈出的重要一步。未来的研究应探讨该指南在不同社区环境中的有效性和实施可行性,以确保其更广泛的适用性和影响力。

患者或公众贡献

脑瘫儿童的家长、舞蹈教师和治疗师积极参与了本研究的各个阶段,从公众咨询到合作共同设计研讨会、决策、指南的审查和完善。

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本文引用的文献

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Phys Occup Ther Pediatr. 2025;45(2):201-221. doi: 10.1080/01942638.2024.2400623. Epub 2024 Sep 12.
2
Perspectives in childhood-onset disabilities: integrating 21st-Century concepts to expand our horizons.儿童期发病残疾的视角:整合21世纪概念以拓展我们的视野。
Disabil Rehabil. 2025 May;47(10):2682-2692. doi: 10.1080/09638288.2024.2394647. Epub 2024 Aug 26.
3
Participation as a means-implications for intervention reasoning.
作为干预推理手段的参与:影响因素
Front Rehabil Sci. 2024 Jun 27;5:1399818. doi: 10.3389/fresc.2024.1399818. eCollection 2024.
4
Development and Evaluation of a Framework for Authentic Online Co-Design: Partnership-Focussed Principles-Driven Online Co-Design.面向真实在线共同设计的框架的开发与评估:以伙伴关系为重点的原则驱动型在线共同设计。
Health Expect. 2024 Aug;27(4):e14138. doi: 10.1111/hex.14138.
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True inclusion: evaluation protocol for an approach to increase meaningful participation of children with disability in athletics.真正的包容:一种提高残疾儿童在田径运动中有意义参与的方法的评估方案。
Front Public Health. 2024 May 22;12:1403866. doi: 10.3389/fpubh.2024.1403866. eCollection 2024.
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How can we reach long-lasting inclusive participation for all? A vision for the future.我们如何实现所有人的持久包容参与?未来的愿景。
Child Care Health Dev. 2024 Mar;50(2):e13249. doi: 10.1111/cch.13249.
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Systematic review and meta-analysis of physical activity interventions to increase elementary children's motor competence: a comprehensive school physical activity program perspective.系统评价和元分析体力活动干预措施以提高小学生运动能力:全面学校体育活动计划视角。
BMC Public Health. 2024 Mar 15;24(1):826. doi: 10.1186/s12889-024-18145-1.
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Patient, Family, Caregiver, and Community Engagement in Research: A Sensibility Evaluation of a Novel Infographic and Planning Guide.患者、家庭、照护者及社区参与研究:对一份新型信息图表及规划指南的敏感性评估
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