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聚会:面向年轻照料者的同伴引导支持小组。

Get-togethers: Guided Peer-Support Groups for Young Carers.

作者信息

Schellenberg Eva, Visscher Rosa M S, Leu Agnes, Guggiari Elena, Rabhi-Sidler Sarah

机构信息

Careum School of Health, Kalaidos University of Applied Sciences, 8006 Zürich, Switzerland.

Institute for Biomedical Ethics, Medical Faculty, University of Basel, 4056 Basel, Switzerland.

出版信息

Healthcare (Basel). 2024 Mar 2;12(5):582. doi: 10.3390/healthcare12050582.

DOI:10.3390/healthcare12050582
PMID:38470693
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10931138/
Abstract

To address Young Carers' (YCs) needs for space and opportunities to reflect and exchange, a guided peer-support programme, the "Get-togethers", was developed in collaboration with YC in Switzerland in 2018. In order to evaluate if the Get-togethers were able to meet their originally set goals of (1) strengthening support among YCs, (2) promoting their life skills, (3) strengthening their social network and (4) promoting the inclusion and participation of YCs, participants of the Get-togethers were asked to complete a short questionnaire about their participation in and experiences with the Get-togethers. We also analysed the standard documentation of 17 Get-togethers held between May 2021 and September 2023. Overall, the Get-togethers were rated positively in almost all areas of the survey and the documentation, indicating that the four originally set objectives of the Get-togethers were (at least largely) achieved. The Get-togethers covered a large part of the needs of YCs, such as emotional support and opportunities to relax and exchange with people in a similar situation, yet they largely failed to reach minor YCs and male YCs. Further support programmes should be developed to address the different needs of different groups of YCs.

摘要

为满足青少年照顾者(YCs)对空间以及反思和交流机会的需求,2018年在瑞士与青少年照顾者合作开展了一项有指导的同伴支持计划——“聚会”。为了评估“聚会”是否能够实现其最初设定的目标,即(1)加强青少年照顾者之间的支持,(2)提升他们的生活技能,(3)加强他们的社交网络,以及(4)促进青少年照顾者的包容和参与,“聚会”的参与者被要求填写一份关于他们参与“聚会”的情况及体验的简短问卷。我们还分析了2021年5月至2023年9月期间举办的17次“聚会”的标准记录。总体而言,在调查和记录的几乎所有方面,“聚会”都得到了积极评价,这表明“聚会”最初设定的四个目标(至少在很大程度上)得以实现。“聚会”满足了青少年照顾者的大部分需求,比如情感支持以及与处于类似情况的人放松和交流的机会,但在很大程度上未能惠及年幼的青少年照顾者和男性青少年照顾者。应制定进一步的支持计划,以满足不同群体青少年照顾者的不同需求。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/846a/10931138/70ec516deb5d/healthcare-12-00582-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/846a/10931138/bd7da9986f8f/healthcare-12-00582-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/846a/10931138/70ec516deb5d/healthcare-12-00582-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/846a/10931138/bd7da9986f8f/healthcare-12-00582-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/846a/10931138/70ec516deb5d/healthcare-12-00582-g002.jpg

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Lancet Public Health. 2022 Sep;7(9):e787-e796. doi: 10.1016/S2468-2667(22)00161-X.
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What Changes for Young Carers? A Qualitative Evaluation of the Impact of Dedicated Support Provision for Young Carers.年轻照顾者有哪些变化?对为年轻照顾者提供专门支持的影响进行的定性评估。
Child Adolesc Social Work J. 2021;38(5):547-558. doi: 10.1007/s10560-021-00790-9. Epub 2021 Sep 14.
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The awareness, visibility and support for young carers across Europe: a Delphi study.欧洲对年轻照顾者的认知、可见度和支持:德尔菲研究。
BMC Health Serv Res. 2020 Oct 7;20(1):921. doi: 10.1186/s12913-020-05780-8.
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