一项远程医疗团体对改善 1 型神经纤维瘤病青少年同伴关系有效性的初步研究。
Pilot study of the effectiveness of a telehealth group for improving peer relationships for adolescents with neurofibromatosis type 1.
机构信息
Department of Psychology, University of Wisconsin- Milwaukee, 2441 E Hartford Ave, Wisconsin, 53211, Milwaukee, USA.
出版信息
Orphanet J Rare Dis. 2024 Mar 12;19(1):115. doi: 10.1186/s13023-024-03093-1.
BACKGROUND
Interventions for social difficulties have not been investigated in the neurofibromatosis type 1 (NF1) population despite observations of elevated rates of social difficulties. In this pilot study, the effectiveness of a 14-week telehealth PEERS® intervention with nineteen adolescents with NF1 (M=13.79 years, SD = 1.32) with social skills difficulties was examined. Measures of social outcomes were completed at three timepoints (before, immediately after, and at 14-week follow-up).
RESULTS
Caregiver-reported social-emotional skills, social impairment, caregiver-reported number of adolescent get-togethers, and teen social knowledge showed significant improvement following the intervention.
CONCLUSIONS
The PEERS® intervention is promising to support the social and friendship skills of adolescents with NF1 who have social difficulties.
背景
尽管观察到神经纤维瘤病 1 型（NF1）患者的社交困难发生率较高，但针对社交困难的干预措施尚未在 NF1 人群中进行研究。在这项初步研究中，我们考察了一项为期 14 周的远程医疗 PEERS®干预措施对 19 名 NF1 青少年（M=13.79 岁，SD=1.32）社交技能困难的有效性。在三个时间点（干预前、干预后即刻和 14 周随访时）完成了社交结果的评估。
结果
干预后，照顾者报告的社交情感技能、社交障碍、照顾者报告的青少年聚会次数以及青少年社交知识均有显著改善。
结论
PEERS®干预措施有望为有社交困难的 NF1 青少年提供支持，帮助他们提高社交和友谊技能。
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