Rangraz Jeddi Fatemeh, Nabovati Ehsan, Mobayen Mohammadreza, Akbari Hossein, Feizkhah Alireza, Motalebi Kashani Mojdeh, Bagheri Toolaroud Parissa
Health Information Management Research Center, Kashan University of Medical Sciences, Kashan, Iran.
Department of Health Information Management & Technology, Kashan University of Medical Sciences, Kashan, Iran.
J Burn Care Res. 2023 Sep 7;44(5):1200-1207. doi: 10.1093/jbcr/irad027.
Recent advances in digital health and increasing access to mobile health (mHealth) tools have led to more effective self-care. This study aimed to identify the minimum data set (MDS) and the requirements of a smartphone application (app) to support caregivers of children with severe burns. The study was performed in three phases in a burn center in the north of Iran in 2022. In the first phase, a literature review was performed. In the second phase, interviews were conducted with 18 caregivers. The third phase was performed in two stages: first, an initial questionnaire was prepared in which the content validity ratio and content validity index were calculated. The final questionnaire included 71 data elements about the MDS and requirements and open-ended elements. Then, the data elements were surveyed by 25 burn experts using the Delphi technique. The minimum acceptable mean score for each item was 3.75. Out of the 71 elements in the first Delphi round, 51 were accepted. In the second Delphi round, 14 data elements were assessed. The most important elements for the MDS were a family relationship, TBSA, the primary cause of the burn, anatomical location, itch, pain, and infection. User registration, educational materials, caregiver-clinician communication, chat box, and appointment booking were the most highlighted functional requirements. Safe login was the most important element for the nonfunctional requirements. It is recommended that health managers and software designers use these functionalities in designing smartphone apps for caregivers of children with burns.
数字健康的最新进展以及移动健康（mHealth）工具的日益普及，带来了更有效的自我护理。本研究旨在确定支持重度烧伤儿童照料者的智能手机应用程序（app）的最小数据集（MDS）及其要求。该研究于2022年在伊朗北部的一家烧伤中心分三个阶段进行。第一阶段，进行了文献综述。第二阶段，对18名照料者进行了访谈。第三阶段分两个阶段进行：首先，编制了一份初始问卷，并计算了内容效度比和内容效度指数。最终问卷包括71个关于MDS和要求的数据元素以及开放式元素。然后，25名烧伤专家使用德尔菲技术对这些数据元素进行了调查。每个项目的最低可接受平均分为3.75。在第一轮德尔菲法的71个元素中，51个被接受。在第二轮德尔菲法中，对14个数据元素进行了评估。MDS最重要的元素是家庭关系、烧伤总面积、烧伤的主要原因、解剖位置、瘙痒、疼痛和感染。用户注册、教育材料、照料者与临床医生沟通、聊天框和预约挂号是最突出的功能要求。安全登录是对非功能要求最重要的元素。建议卫生管理人员和软件设计师在为烧伤儿童照料者设计智能手机应用程序时使用这些功能。
