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土耳其 COVID-19 大流行期间脑卒中患者照料者的负担和生活质量:一项横断面研究。

The Burden and Quality of Life in Caregivers of Individuals With Stroke During the COVID-19 Pandemic in Turkey: A Cross-Sectional Study.

机构信息

Department of Occupational Therapy, Hacettepe University, Ankara, Turkey.

Department of Physical Therapy and Rehabilitation, Kayseri City Hospital, Kayseri, Turkey.

出版信息

Occup Ther Health Care. 2024 Jul;38(3):619-635. doi: 10.1080/07380577.2024.2324286. Epub 2024 Mar 19.

DOI:10.1080/07380577.2024.2324286
PMID:38504580
Abstract

This study investigated the caregiving burden, quality of life and life satisfaction of caregivers of individuals with stroke during the pandemic period. A descriptive a study was performed with a sample of caregivers ( = 80) of inpatient individuals with stroke in Kayseri, Turkey. The Bakas Caregiving Outcomes Scale, Short Form Health Survey-36, and Temporal Satisfaction with Life Scale were used as well as some open-ended questions. Using descriptive analysis and correlations, results showed that caregiving burden of the participants was correlated to quality of life and life satisfaction during the COVID-19 ( < 0.05). Specific types of burden include: stress, isolation, financial issues, disruption of therapy, patient-caregiver relationship, and kinship relations. These findings provide important information about the increased burden of caregivers during the pandemic. This study offers information to design a framework of interventions to reduce the physical, social, and psychological effects on caregivers in similar conditions.

摘要

本研究调查了大流行期间脑卒中患者照顾者的照顾负担、生活质量和生活满意度。在土耳其开塞利,对 80 名住院脑卒中患者照顾者进行了描述性研究。使用了 Bakas 照顾者结果量表、简短健康调查-36 量表和时间满意度生活量表以及一些开放式问题。通过描述性分析和相关性分析,结果表明,参与者在 COVID-19 期间的照顾负担与生活质量和生活满意度呈正相关(<0.05)。具体的负担类型包括:压力、隔离、经济问题、治疗中断、患者-照顾者关系和亲属关系。这些发现为大流行期间照顾者负担加重提供了重要信息。本研究为设计干预框架提供了信息,以减轻类似情况下照顾者的身体、社会和心理影响。

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