University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK.
University of Birmingham College of Medical and Dental Sciences, Birmingham, UK
BMJ Paediatr Open. 2024 Mar 21;8(1):e002288. doi: 10.1136/bmjpo-2023-002288.
This systematic review aims to synthesise the qualitative evidence exploring parents' experiences of children with acquired brain injury (ABI) undergoing neurorehabilitation during the first year post-injury.
A systematic review of qualitative research was conducted using thematic synthesis with Thomas and Harden's approach. The population, exposure and outcome model was used for the search strategy. The electronic databases Ovid Embase, Ovid MEDLINE, CINAHL, Scopus and PsycINFO were searched from 2009 to 2023. The review included qualitative and mixed-method studies published in English only. Grey literature was excluded. There were no geographical restrictions. Reporting within the review followed the Enhancing Transparency in Reporting the Synthesis of Qualitative Research guideline. The studies' quality was appraised using the Critical Appraisal Skills Programme tool.
Three studies met the inclusion criteria and were included in the synthesis, representing the experiences of 30 parents. The quality assessment showed that the three included studies met most quality indicators. Following thematic synthesis, four analytical themes were identified: school unpreparedness, parents as advocates and navigators, parents as monitors, and parents recognising the impact of ABI on their child. The reviewers proposed a group of recommendations for services reviewing their parental support.
This review highlights some challenges parents of children diagnosed with ABI experience during their child's neurorehabilitation journey. This review has suggested potential improvements that could be made in paediatric neurorehabilitation services when reviewing their parental support and care pathways. These will ultimately influence parents' and children's experience of paediatric neurorehabilitation services.
本系统评价旨在综合定性证据，探索在受伤后第一年接受神经康复治疗的获得性脑损伤（ABI）儿童的父母的体验。
采用主题综合法，结合 Thomas 和 Harden 的方法对定性研究进行系统评价。使用人群、暴露和结局模型制定检索策略。对 Ovid Embase、Ovid MEDLINE、CINAHL、Scopus 和 PsycINFO 电子数据库进行了 2009 年至 2023 年的检索。本综述纳入了仅以英文发表的定性和混合方法研究。排除灰色文献。无地理限制。本综述的报告遵循增强定性研究综合报告透明度指南。使用批判性评估技能计划工具对研究质量进行评估。
有三项研究符合纳入标准，并被纳入综合分析，代表了 30 位家长的经验。质量评估表明，纳入的三项研究符合大多数质量指标。经过主题综合分析，确定了四个分析主题：学校准备不足、父母作为倡导者和导航者、父母作为监测者以及父母认识到 ABI 对孩子的影响。审查员提出了一组关于服务审查其父母支持的建议。
本综述强调了一些患有 ABI 的儿童的父母在孩子神经康复过程中经历的挑战。本综述提出了一些儿科神经康复服务在审查其父母支持和护理途径时可以做出的潜在改进，这将最终影响父母和儿童对儿科神经康复服务的体验。
