Neuroethics Canada, Division of Neurology, Department of Medicine, University of British Columbia, Vancouver, British Columbia, Canada.
Provincial Health Services Authority of British Columbia, Vancouver, British Columbia, Canada.
PM R. 2024 Oct;16(10):1154-1161. doi: 10.1002/pmrj.13146. Epub 2024 Mar 23.
In this paper, we explore how the concepts of autonomy and autonomous choice are understood in the context of spinal cord injury in the academic literature, both in reporting on research results and more broadly on outcomes and quality of life. We find inconsistent, framework-absent portrayals of autonomy as well as an absence of discourse that draws upon ethical constructs and theory. In response, we advance a person-centered framework for spinal cord injury research that combines both lived experience and a disability ethics approach to fill this gap.
在本文中，我们探讨了自主性和自主选择的概念在学术文献中是如何被理解的，无论是在报告研究结果还是更广泛的结果和生活质量方面。我们发现，自主性的描述既不一致，也没有框架，也没有利用伦理结构和理论的论述。为此，我们提出了一个以人为本的脊髓损伤研究框架，结合了生活体验和残疾伦理方法，以填补这一空白。
