墨西哥非综合征性颅缝早闭儿童及青少年的健康相关生活质量
Health-Related Quality of Life in Mexican Children and Adolescents with Non-Syndromic Craniosynostosis.
作者信息
Moreno-Villagómez Julieta, Castillo-Mimila Miguel, Yáñez-Téllez Guillermina, Prieto-Corona Belén, García-Méndez Antonio
机构信息
Neuroscience Group. Facultad de Estudios Superiores Iztacala, Universidad Nacional Autónoma de México, Tlalnepantla, Estado de México, CP 54090, México.
Pediatric Neurosurgery Department. Hospital General "Dr. Gaudencio González Garza", Centro Médico Nacional la Raza, Ciudad de México, CP 02990, México.
出版信息
Cleft Palate Craniofac J. 2025 Jul;62(7):1271-1274. doi: 10.1177/10556656241242916. Epub 2024 Mar 29.
OBJECTIVE
Assess the Health-Related Quality of Life in children and adolescents with non-syndromic craniosynostosis and compare it with participants without craniosynostosis.
DESIGN
Non-experimental, cross-sectional design.
SETTING
The assessment was done remotely and the instrument was sent via chat or email.Patients/ Participants:Participants (ages 8-17) with non-syndromic craniosynostosis (n = 27) and without craniosynostosis (n = 26).
MAIN OUTCOME MEASURE(S): We used an adapted version for the Mexican population of the Health-Related Quality of Life Questionnaire for Children and Adolescents -KIDSCREEN-52.
RESULTS
All scores were in the average clinical range and both groups scored similarly in all domains except those with craniosynostosis were significantly lower in the Social Support and Peers domain (r= 0.48).
CONCLUSIONS
Children and adolescents with non-syndromic craniosynostosis reported similar Health-Related Quality of Life as the control group, except for the Social Support domain, which should be investigated in future studies.
目的
评估非综合征性颅缝早闭儿童和青少年的健康相关生活质量，并与无颅缝早闭的参与者进行比较。
设计
非实验性横断面设计。
设置
评估通过远程方式进行，工具通过聊天或电子邮件发送。患者/参与者：非综合征性颅缝早闭的参与者（8至17岁，n = 27）和无颅缝早闭的参与者（n = 26）。
主要观察指标
我们使用了针对墨西哥人群改编的儿童和青少年健康相关生活质量问卷-KIDSCREEN-52。
结果
所有得分均处于平均临床范围内，两组在所有领域的得分相似，但颅缝早闭组在社会支持和同伴领域的得分显著较低（r = 0.48）。
结论
非综合征性颅缝早闭的儿童和青少年报告的健康相关生活质量与对照组相似，但社会支持领域除外，该领域应在未来研究中进行调查。
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