Palomo-Carrión Rocío, Romero-Galisteo Rita-Pilar, Romay-Barrero Helena, Cortés-Vega María-Dolores, Casuso-Holgado María-Jesús, Pinero-Pinto Elena
Department of Nursing, Physiotherapy and Occupational Therapy, Faculty of Physiotherapy and Nursing, University of Castilla-La Mancha, Toledo, Spain.
Department of Physiotherapy, Faculty of Health Sciences, University of Málaga, Arquitecto Francisco Peñalosa St., 3 (Campus Teatinos), 29014 Málaga, Spain.
Ther Adv Chronic Dis. 2022 Feb 24;13:20406223221078091. doi: 10.1177/20406223221078091. eCollection 2022.
The aim of this study was to analyze the impact of the lack of face-to-face schooling during the COVID-19 confinement on the family quality of life of children aged 3-6 years with hemiplegia, obstetrical brachial palsy, and typical development.
An observational and cross-sectional study, using an online survey hosted in Google Forms from October to December 2020, was performed in families with children with infantile hemiplegia, obstetrical brachial palsy, and typical development aged 3-6 years living in Spain. The quality of life and family impact (measured through Pediatric Quality of Life Questionnaires, PedsQL™) were evaluated, as well as the affected upper limb side, the presence of other associated problems, the parents' job, lack of use of the affected upper limb, and the type of online intervention using different channels: phone calls, emails, and video calls. Family expectations on the treatment and on their acquired capacity to solve problems related to their children were also measured.
A total of 93 families participated in the study and the children's quality of life and family impact obtained a strong correlation in three populations: infantile hemiplegia ( = 0.844), obstetrical brachial palsy ( = 0.513), and typical development ( = 0.904). There was no association between quality of life and online intervention (phone calls and emails were selected), > 0.05.
The deprivation of schooling coupled with home confinement due to the COVID-19 pandemic had a greater impact on the quality of life of children with disabilities: infantile hemiplegia and obstetrical brachial palsy than on typically developing children and on their families. However, the online intervention did not produce improvements in quality of life, which could be a consequence of using emails or phone calls instead of video calls to interact with the families.
本研究旨在分析2019冠状病毒病隔离期间缺乏面对面学校教育对3至6岁偏瘫、产瘫和发育正常儿童家庭生活质量的影响。
采用观察性横断面研究，于2020年10月至12月通过谷歌表单进行在线调查，研究对象为居住在西班牙的3至6岁患有小儿偏瘫、产瘫和发育正常的儿童家庭。评估了生活质量和家庭影响（通过儿童生活质量问卷PedsQL™ 进行测量），以及受影响的上肢侧、是否存在其他相关问题、父母的工作、受影响上肢的使用不足情况，以及使用不同渠道（电话、电子邮件和视频通话）的在线干预类型。还测量了家庭对治疗的期望以及他们解决与孩子相关问题的能力。
共有93个家庭参与了该研究，在三个群体中，儿童的生活质量和家庭影响之间存在强相关性：小儿偏瘫（=0.844）、产瘫（=0.513）和发育正常（=0.904）。生活质量与在线干预（选择电话和电子邮件）之间无关联，>0.05。
2019冠状病毒病大流行导致的学校教育剥夺和居家隔离对残疾儿童（小儿偏瘫和产瘫）的生活质量影响比对发育正常儿童及其家庭的影响更大。然而，在线干预并未改善生活质量，这可能是因为使用电子邮件或电话而非视频通话与家庭互动的结果。
