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尿路造口患者的中国家庭照顾者的获益:一项定性研究。

Benefits of Chinese family caregivers of patients with urostomy: a qualitative study.

机构信息

First Hospital of Shanxi Medical University, Taiyuan, China.

Shanxi Medical University, Taiyuan, China.

出版信息

Support Care Cancer. 2024 Apr 3;32(4):266. doi: 10.1007/s00520-024-08470-x.

Abstract

BACKGROUND

Family caregivers, also known as informal caregivers, are critical for the home care of patients with urostomy. The present study aimed to investigate the benefits of family caregivers in China while taking care of patients with urostomy from a positive perspective.

METHODS

A qualitative research design was adopted, with a thematic analysis. The qualitative research software NVivo was used for data analysis. Twenty-two family caregivers of urostomy patients participated in an in-depth interview for 60-90 min. A qualitative analysis was performed using a thematic approach in accordance with the six-stage thematic analysis process reported by Braun and Clarke (2006).

RESULTS

The following four benefits were identified: mastering knowledge and skills, promoting self-growth, establishing close family ties, and changing the way of life. Among these four themes, 11 sub-themes were constructed by coders.

CONCLUSIONS

This study provides new insights into intervention measures for family caregivers of patients with urostomy, which could play an important role in developing the overall model of family-centered nursing.

摘要

背景

家庭照料者,也被称为非正式照料者,对尿流改道术患者的家庭护理至关重要。本研究旨在从积极的角度探讨中国家庭照料者在照顾尿流改道术患者方面的益处。

方法

本研究采用定性研究设计,采用主题分析法。使用定性研究软件 NVivo 进行数据分析。22 名尿流改道术患者的家庭照料者参加了时长为 60-90 分钟的深入访谈。采用主题分析法,按照 Braun 和 Clarke(2006)报道的六阶段主题分析过程进行定性分析。

结果

确定了以下四个益处:掌握知识和技能、促进自我成长、建立亲密的家庭关系和改变生活方式。在这四个主题中,编码人员构建了 11 个子主题。

结论

本研究为尿流改道术患者家庭照料者的干预措施提供了新的见解,这可能对发展以家庭为中心的整体护理模式起到重要作用。

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