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2
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Value Health. 2021 Mar;24(3):404-412. doi: 10.1016/j.jval.2020.10.019. Epub 2020 Dec 19.
3
Embryologically Based Classification Specifies Gender Differences in the Prevalence of Orofacial Cleft Subphenotypes.基于胚胎学的分类明确了口面裂亚表型在患病率上的性别差异。
Cleft Palate Craniofac J. 2021 Jan;58(1):54-60. doi: 10.1177/1055665620935363. Epub 2020 Jun 30.
4
CLEFT-Q: Detecting Differences in Outcomes among 2434 Patients with Varying Cleft Types.CLEFT-Q:检测 2434 例不同类型裂患者结局的差异。
Plast Reconstr Surg. 2019 Jul;144(1):78e-88e. doi: 10.1097/PRS.0000000000005723.
5
Psychometric findings and normative values for the CLEFT-Q based on 2434 children and young adult patients with cleft lip and/or palate from 12 countries.基于来自 12 个国家的 2434 例唇裂和/或腭裂患儿和青少年患者的 CLEFT-Q 量表的心理计量学研究结果和常模值。
CMAJ. 2018 Apr 16;190(15):E455-E462. doi: 10.1503/cmaj.170289.
6
Implementation of a Standardized Data-Collection System for Comprehensive Appraisal of Cleft Care.实施用于腭裂护理综合评估的标准化数据收集系统。
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What Matters to Patients With Cleft Lip and/or Palate: An International Qualitative Study Informing the Development of the CLEFT-Q.唇腭裂患者关心的问题:一项为《唇腭裂问卷》(CLEFT-Q)开发提供信息的国际定性研究。
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8
Oral health-related quality of life of children with oral clefts and their families.口腔裂患儿及其家庭的口腔健康相关生活质量。
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Establishing Content Validity of the CLEFT-Q: A New Patient-reported Outcome Instrument for Cleft Lip/Palate.确立唇腭裂患者报告结局量表(CLEFT-Q)的内容效度:一种用于唇腭裂的新型患者报告结局工具
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唇腭裂患者的自我口腔健康感知和口腔面部美学。

Self-perceived oral health and orofacial aesthetics of cleft patients.

机构信息

Department of Oral and Maxillofacial Surgery, Special Dental Care and Orthodontics, Erasmus University Medical Center, Dr. Molewaterplein 40, 3015 GD, Rotterdam, The Netherlands.

Department of Paediatric Dentistry, Academic Center for Dentistry Amsterdam (ACTA), Amsterdam, The Netherlands.

出版信息

Eur Arch Paediatr Dent. 2024 Jun;25(3):359-366. doi: 10.1007/s40368-024-00891-w. Epub 2024 Apr 4.

DOI:10.1007/s40368-024-00891-w
PMID:38575757
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11233304/
Abstract

PURPOSE

To evaluate the self-perceived oral health and aesthetics of the dentition and jaw in patients with different types of oral cleft, measured by patient-reported outcome measures (PROMs). Additionally, to compare the results of the PROMs between cleft lip and or/palate (CL/P) patients and non-affected controls.

METHODS

420 CL/P patients treated at the cleft team of the Erasmus Medical Center, Rotterdam, The Netherlands, were included, and 138 non-cleft patients were recruited as control-group. Patient's perceptions were retrospectively evaluated using the CLEFT-Q Teeth for dental aesthetics at ages 8, 12 and 22, CLEFT-Q Jaw for jaw aesthetics at ages 12 and 22, and the Child Oral Health Impact Profile-Oral Symptoms Subscale (COHIP-OSS) for oral health at ages 8 and 12. One-way ANOVA was used to compare differences in oral health and aesthetic perceptions among age-groups, cleft types, as well as between cases and controls.

RESULTS

CL/P patients were significantly less satisfied than controls with their dental aesthetics (p = 0.001). CL/P patients reported significantly lower satisfaction on CLEFT-Q Teeth scores at ages 8 and 12, than at 22 years (p < 0.001). Patients with the most extensive cleft phenotype, Cleft Lip and Palate (CLAP), reported lowest satisfaction on the CLEFT-Q Teeth. No differences in perceptions of oral health nor in aesthetics of the jaw were found in the different cleft types, ages, nor in study versus control group.

CONCLUSION

This study found differences in self-perceived dental aesthetics: CL/P patients are less satisfied than non-affected controls. CLAP patients are least satisfied, but satisfaction increases with age.

摘要

目的

通过患者报告的结果测量(PROMs)评估不同类型口腔裂患者的自我感知口腔健康和牙齿、颌部美观。此外,比较唇腭裂(CL/P)患者和非患者对照组的 PROMs 结果。

方法

纳入荷兰鹿特丹伊拉斯谟医疗中心口腔裂治疗小组的 420 例 CL/P 患者,招募 138 例非裂患者作为对照组。使用 CLEFT-Q 牙齿美学量表(8、12 和 22 岁时用于评估牙齿美观)、CLEFT-Q 颌部美学量表(12 和 22 岁时用于评估颌部美观)和儿童口腔健康影响简表-口腔症状子量表(8 和 12 岁时用于评估口腔健康),回顾性评估患者的感知。采用单因素方差分析比较年龄组、裂类型以及病例与对照组之间的口腔健康和美观感知差异。

结果

CL/P 患者对其牙齿美观的满意度明显低于对照组(p=0.001)。CL/P 患者在 8 岁和 12 岁时的 CLEFT-Q 牙齿量表评分满意度显著低于 22 岁时(p<0.001)。具有最广泛裂表型的 CLAP 患者对 CLEFT-Q 牙齿的满意度最低。不同裂类型、年龄以及研究组与对照组之间,在口腔健康感知或颌部美观方面均未发现差异。

结论

本研究发现自我感知的牙齿美观存在差异:CL/P 患者的满意度低于非患者对照组。CLAP 患者的满意度最低,但满意度随年龄增长而增加。