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《系统性红斑狼疮患者身体活动和锻炼的推荐意见:国际工作组的共识》。

Recommendations for physical activity and exercise in persons living with Systemic Lupus Erythematosus (SLE): consensus by an international task force.

机构信息

Department of Physiology and Functional Exploration, Hôpitaux Universitaires de Strasbourg, Strasbourg, France.

Department of Rheumatology, National Reference Center for Rare Autoimmune Diseases (RESO), Hôpitaux Universitaires de Strasbourg, Strasbourg, France.

出版信息

RMD Open. 2024 Apr 4;10(2):e004171. doi: 10.1136/rmdopen-2024-004171.

Abstract

OBJECTIVE

This international task force aimed to provide healthcare professionals and persons living with systemic lupus erythematosus (SLE) with consensus-based recommendations for physical activity and exercise in SLE.

METHODS

Based on evidence from a systematic literature review and expert opinion, 3 overarching principles and 15 recommendations were agreed on by Delphi consensus.

RESULTS

The overarching principles highlight the importance of shared decision-making and the need to explain the benefits of physical activity to persons living with SLE and other healthcare providers. The 15 specific recommendations state that physical activity is generally recommended for all people with SLE, but in some instances, a medical evaluation may be needed to rule out contraindications. Pertaining to outdoor activity, photoprotection is necessary. Both aerobic and resistance training programmes are recommended, with a gradual increase in frequency and intensity, which should be adapted for each individual, and ideally supervised by qualified professionals.

CONCLUSION

In summary, the consensus reached by the international task force provides a valuable framework for the integration of physical activity and exercise into the management of SLE, offering a tailored evidence-based and eminence-based approach to enhance the well-being of individuals living with this challenging autoimmune condition.

摘要

目的

本国际工作组旨在为医疗保健专业人员和系统性红斑狼疮(SLE)患者提供基于共识的 SLE 患者体力活动和运动建议。

方法

根据系统文献回顾和专家意见的证据,通过德尔菲共识达成了 3 项总体原则和 15 项建议。

结果

总体原则强调了共同决策的重要性,以及向 SLE 患者和其他医疗保健提供者解释体力活动益处的必要性。15 项具体建议指出,一般建议所有 SLE 患者进行体力活动,但在某些情况下,可能需要进行医学评估以排除禁忌症。户外活动需要进行光保护。建议进行有氧运动和抗阻训练计划,频率和强度逐渐增加,应根据每个人进行调整,最好由合格的专业人员进行监督。

结论

总之,国际工作组达成的共识为将体力活动和运动纳入 SLE 管理提供了有价值的框架,提供了一种量身定制的基于证据和权威的方法,以增强患有这种具有挑战性的自身免疫性疾病的个体的幸福感。

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