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癌症患者家属照顾者的照顾后果:定性研究的叙述性综述。

Caregiving consequences in cancer family caregivers: a narrative review of qualitative studies.

机构信息

Nursing and Midwifery Care Research Center, School of Nursing and Midwifery, Iran University of Medical Sciences, Tehran, Iran.

Cardiovascular Nursing Research Center, Rajaie Cardiovascular Medical and Research Center, Tehran, Iran.

出版信息

Front Public Health. 2024 Mar 22;12:1334842. doi: 10.3389/fpubh.2024.1334842. eCollection 2024.

Abstract

BACKGROUND

Cancer is a significant public health issue, causing various challenges for individuals affected by it. As cancer progresses, patients often become dependent on others for support. Family caregivers and members play a crucial role in the recovery and rehabilitation of these patients. However, caregivers themselves face numerous challenges throughout the course of their family member's illness. Exploring the experiences of family caregivers can inform long-term planning and supportive interventions to address their caregiving difficulties. This study reviews previous literature on caregiving outcomes.

METHOD

This study presents a narrative review of qualitative studies, analyzing a total of 23 articles. The results were extracted and organized into subcategories. After revision by the research team, main categories were identified. These categories encompass both positive and negative outcomes of caregiving.

RESULTS

The findings of this review demonstrate that caring for a family member with cancer has significant implications for caregivers. These implications include: (A) Positive outcomes of caregiving (such as achieving self-management and balance, promoting kinship intimacy, finding meaning and purpose, and experiencing spiritual growth) and (B) Negative outcomes of caregiving (including care-related physical exhaustion, disruption of personal life plans, psycho-emotional consequences, and socio-economic burden).

CONCLUSION

The results of this study highlight the challenges faced by family caregivers and emphasize the importance of addressing their needs within the healthcare system. By providing support and attention to their well-being, caregivers can enhance their resilience and adaptability in managing caregiving difficulties.

摘要

背景

癌症是一个重大的公共卫生问题,给患者带来了各种挑战。随着癌症的进展,患者往往需要依靠他人的支持。在患者的康复和治疗过程中,家庭照顾者和家庭成员起着至关重要的作用。然而,照顾者自身在照顾患者的过程中也面临着许多挑战。探讨家庭照顾者的体验可以为长期规划和支持性干预措施提供信息,以解决他们的照顾困难。本研究回顾了以往关于照顾者结局的文献。

方法

本研究对定性研究进行了叙述性综述,共分析了 23 篇文章。提取并组织了结果,并由研究小组进行了修订,确定了主要类别。这些类别包括照顾的积极和消极结果。

结果

本综述的研究结果表明,照顾癌症患者对照顾者有重大影响。这些影响包括:(A) 照顾的积极结果(如实现自我管理和平衡、促进亲情亲密、找到意义和目的以及体验精神成长)和 (B) 照顾的消极结果(包括与照顾相关的身体疲惫、个人生活计划中断、心理情绪后果和社会经济负担)。

结论

本研究的结果强调了家庭照顾者所面临的挑战,并强调了在医疗保健系统中满足他们需求的重要性。通过为他们的福祉提供支持和关注,照顾者可以增强他们在应对照顾困难时的适应能力和弹性。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1536/10997218/5cdfeb4a2ef2/fpubh-12-1334842-g001.jpg

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