Robinson-Papp Jessica, Lawrence Steven, Wadley Antonia, Scott Whitney, George Mary Catherine, Josh Jo, O'Brien Kelly K, Price Collen, Uebelacker Lisa, Edelman E Jennifer, Evangeli Michael, Goodin Burel R, Harding Richard, Nkhoma Kennedy, Parker Romy, Sabin Caroline, Slawek Deepika, Tsui Judith I, Merlin Jessica S
Department of Neurology, Icahn School of Medicine at Mount Sinai, New York, NY, USA.
Vilcek Institute of Graduate Biomedical Sciences, NYU Grossman School of Medicine, New York, NY, USA.
AIDS Care. 2024 Apr 8:1-11. doi: 10.1080/09540121.2024.2334358.
The Global Task Force on Chronic Pain in HIV published seven research priorities in the field of HIV-associated chronic pain in 2019: (1) causes; (2) management; (3) treatment individualization and integration with addiction treatment; (4) mental and social health factors; (5) prevalence; (6) treatment cost effectiveness; and (7) prevention. The current study used a web-based survey to determine whether the research topics were aligned with the priorities of adults with lived experiences of HIV and chronic pain. We also collected information about respondents' own pain and treatment experiences. We received 311 survey responses from mostly US-based respondents. Most respondents reported longstanding, moderate to severe, multisite pain, commonly accompanied by symptoms of anxiety and/or depression. The median number of pain treatments tried was 10 (IQR = 8, 13), with medications and exercise being the most common modalities, and opioids being viewed as the most helpful. Over 80% of respondents considered all research topics either "extremely important" or "very important". Research topic #2, which focused on optimizing management of pain in people with HIV, was accorded the greatest importance by respondents. These findings suggest good alignment between the priorities of researchers and US-based people with lived experience of HIV-associated chronic pain.
全球艾滋病毒慢性疼痛特别工作组于2019年公布了艾滋病毒相关慢性疼痛领域的七项研究重点：(1) 病因；(2) 管理；(3) 治疗个体化及与成瘾治疗的整合；(4) 心理和社会健康因素；(5) 患病率；(6) 治疗成本效益；以及(7) 预防。本研究采用基于网络的调查来确定这些研究主题是否与有艾滋病毒和慢性疼痛生活经历的成年人的优先事项一致。我们还收集了受访者自身疼痛和治疗经历的信息。我们收到了311份主要来自美国受访者的调查回复。大多数受访者报告有长期的、中度至重度的、多部位疼痛，通常伴有焦虑和/或抑郁症状。尝试过的疼痛治疗方法的中位数为10种（四分位距=8，13），药物和运动是最常见的方式，而阿片类药物被认为是最有帮助的。超过80%的受访者认为所有研究主题 “极其重要” 或 “非常重要”。研究主题#2聚焦于优化艾滋病毒感染者的疼痛管理，被受访者视为最重要的。这些发现表明，研究人员的优先事项与有艾滋病毒相关慢性疼痛生活经历的美国人群的优先事项之间具有良好的一致性。
