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为同时患有精神和身体疾病的人群塑造研究:来自英国的一项研究重点制定倡议。

Shaping research for people living with co-existing mental and physical health conditions: A research priority setting initiative from the United Kingdom.

机构信息

Department of Health Sciences, University of York, York, UK.

Public Contributor, Leeds, UK.

出版信息

Health Expect. 2024 Apr;27(2):e14044. doi: 10.1111/hex.14044.

DOI:10.1111/hex.14044
PMID:38613770
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11015889/
Abstract

INTRODUCTION

Those with severe and enduring mental ill health are at greater risk of long-term physical health conditions and have a reduced life expectancy as a result. Multiple factors compound this health inequality, and the need for setting research priorities in this area is highlighted with physical and mental healthcare services being separate, and limited multimorbidity research.

METHODS

The aim of this exercise was to work in partnership with healthcare professionals and carers, family, friends and individuals with lived experience of both mental and physical health conditions, to set research priorities to help people with mental health conditions to look after their physical health. The exercise was guided by the James Lind Alliance approach. For this, a steering group was set up, two surveys were completed and a final priority workshop was conducted.

RESULTS

This priority setting exercise guided by people's needs and lived experience has produced a set of well-defined research topics. Initially, 555 research questions were suggested in the first survey, which were refined to 54 questions for the second survey. A priority setting workshop was then conducted to get the final 10 priorities.

CONCLUSIONS

Taking these topics forward to improve services and treatment for both mental and physical ill health may in turn improve physical health and lessen the reduced life expectancy of those living with mental ill health.

PATIENT OR PUBLIC CONTRIBUTION

This work was completed in collaboration with people who have lived experience of mental ill health and physical health conditions, as well as carers, family and friends. Their contribution has been significant for this work from piloting surveys, amending language used and educating the researchers and contributing to this paper. The initial work was completed with a steering group and continued with surveys and workshops.

摘要

简介

患有严重和持久精神健康问题的人患长期身体健康状况的风险更高,因此预期寿命缩短。多种因素加剧了这种健康不平等,需要确定该领域的研究重点,因为身体和心理健康服务是分开的,并且多疾病研究有限。

方法

这项工作的目的是与医疗保健专业人员和护理人员、家属、朋友以及同时患有精神和身体疾病的个人合作,确定研究重点,以帮助患有精神健康问题的人关注自己的身体健康。这项工作遵循詹姆斯·林德联盟(James Lind Alliance)的方法。为此,成立了一个指导小组,完成了两项调查,并进行了最终的优先事项研讨会。

结果

这项由人们的需求和生活经验指导的重点制定工作产生了一系列明确界定的研究主题。最初,第一项调查提出了 555 个研究问题,在第二项调查中,这些问题被精炼为 54 个问题。然后进行了优先事项研讨会,确定了最后的 10 个优先事项。

结论

推进这些主题以改善精神和身体疾病的服务和治疗,反过来可能会改善身体健康状况,并减少患有精神疾病的人的预期寿命。

患者或公众贡献

这项工作是与患有精神健康和身体健康问题的人以及护理人员、家属和朋友合作完成的。他们的贡献对于这项工作非常重要,包括试点调查、修改使用的语言以及为研究人员提供教育和为本论文做出贡献。最初的工作是由指导小组完成的,然后通过调查和研讨会继续进行。

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