Abdominal Oncology Ward, Division of Medical Oncology, Cancer Center, West China Hospital, Sichuan University, No. 37 Guoxue Alley, Wuhou District, Chengdu, 610041, Sichuan Province, China.
Department of Oncology, Chengdu Seventh People's Hospital (Affiliated Cancer Hospital of Chengdu Medical College), No. 1 Shi'er Zhong Street, Wuhou District, Chengdu, 610041, Sichuan Province, China.
BMC Palliat Care. 2024 Apr 17;23(1):102. doi: 10.1186/s12904-024-01425-3.
Advanced cancer patients with good Eastern Cooperative Oncology Group (ECOG) performance status (score 0-1) are underrepresented in current qualitative reports compared with their dying counterparts.
To explore the experiences and care needs of advanced cancer patients with good ECOG.
A qualitative phenomenological approach using semi-structured interview was employed. Data was analyzed using the Colaizzi's method.
SETTING/PARTICIPANTS: Purposive sample of terminal solid cancer patients on palliative care aged 18-70 years with a 0-1 ECOG score were recruited from a tertiary general hospital.
Sixteen participants were interviewed. Seven themes were generated from the transcripts, including experiencing no or mild symptoms; independence in self-care, decision-making, and financial capacity; prioritization of cancer growth suppression over symptom management; financial concerns; hope for prognosis and life; reluctance to discuss death and after-death arrangements; and use of complementary and alternative medicine (CAM) and religious coping.
Advanced cancer patients with good ECOG have distinct experiences and care needs from their dying counterparts. They tend to experience no or mild symptoms, demonstrate a strong sense of independence, and prioritize cancer suppression over symptom management. Financial concerns were common and impact their care-related decision-making. Though being hopeful for their prognosis and life, many are reluctant to discuss death and after-death arrangements. Many Chinese patients use herbal medicine as a CAM modality but need improved awareness of and accessibility to treatment options. Healthcare professionals and policy-makers should recognize their unique experiences and needs when tailoring care strategies and policies.
与临终患者相比，目前的定性报告中，身体状况较好（ECOG 评分为 0-1）的晚期癌症患者代表性不足。
探讨身体状况较好的晚期癌症患者的体验和护理需求。
采用半结构式访谈的定性现象学方法。使用 Colaizzi 的方法对数据进行分析。
地点/参与者：从一家三级综合医院招募了年龄在 18-70 岁、ECOG 评分为 0-1 的终末期实体癌患者，作为有代表性的样本。
对 16 名参与者进行了访谈。从转录本中生成了 7 个主题，包括无或轻度症状体验；自我护理、决策和财务能力独立；优先考虑抑制癌症生长而不是症状管理；财务问题；对预后和生命的希望；不愿讨论死亡和死后安排；以及使用补充和替代医学（CAM）和宗教应对方式。
身体状况较好的晚期癌症患者与临终患者有明显不同的体验和护理需求。他们往往没有或仅有轻度症状，表现出强烈的独立意识，并优先考虑抑制癌症而不是管理症状。财务问题很常见，并影响他们的护理相关决策。尽管对预后和生命抱有希望，但许多人不愿讨论死亡和死后安排。许多中国患者将草药作为一种 CAM 方式，但需要提高对治疗选择的认识和可及性。医疗保健专业人员和政策制定者在制定护理策略和政策时应认识到他们的独特体验和需求。
