School of Nursing and Midwifery, Faculty of Health, University of Plymouth, Plymouth, UK.
Faculty of Health, University of Northampton, Northampton, UK.
Int J Med Inform. 2024 Jul;187:105459. doi: 10.1016/j.ijmedinf.2024.105459. Epub 2024 Apr 16.
Acute illness accounts for the majority of episodes of illness in children under five years of age and is the age group with the highest consultation rate in general practice in the UK. The number of children presenting to emergency care is also steadily increasing, having risen beyond pre-pandemic numbers. Such high, and increasing, rates of consultation have prompted concerns about parents' level of knowledge and confidence in caring for their children when they are ill, and particularly when and how to seek help appropriately.
The ASK SNIFF collaboration research programme identified parents' need for accurate and accessible information to help them know when to seek help for a sick child in 2010. This paper presents the resulting programme of research which aimed to co-develop an evidence-based safety netting intervention (mobile app) to help parents know when to seek help for an acutely ill child under the age of five years in the UK.
Our programme used a collaborative six step process with 147 parent and 324 health professional participants over a period of six years including: scoping existing interventions, systematic review, qualitative research, video capture, content identification and development, consensus methodology, parent and expert clinical review.
Our programme has produced evidence-based content for an app supported by video clips. Our collaborative approach has supported every stage of our work, ensuring that the end result reflects the experiences, perspectives and expressed needs of parents and the clinicians they consult.
We have not found any other resource which has used this type of approach, which may explain why there is no published evaluation data demonstrating the impact of existing UK resources. Future mobile apps should be designed and developed with the service users for whom they are intended.
五岁以下儿童的疾病大多数为急性疾病，且该年龄段在英国的全科医疗中是咨询率最高的群体。到急诊就诊的儿童人数也在稳步增加，已超过大流行前的数量。如此高且不断增加的咨询率引发了人们对父母在孩子生病时照顾孩子的知识和信心水平的担忧，尤其是在何时以及如何寻求适当帮助方面。
ASK SNIFF 合作研究计划于 2010 年确定了父母对准确和易于获取的信息的需求，以帮助他们了解何时需要为生病的孩子寻求帮助。本文介绍了由此产生的研究计划，该计划旨在共同开发一个基于证据的安全网干预措施（移动应用程序），以帮助英国 5 岁以下急性病儿童的父母了解何时需要寻求帮助。
我们的计划使用了一个协作的六步流程，其中包括 147 名家长和 324 名健康专业人员参与，历时六年，包括：确定现有干预措施的范围、系统评价、定性研究、视频捕获、内容识别和开发、共识方法、家长和专家临床审查。
我们的计划为应用程序提供了基于视频剪辑的循证内容。我们的协作方法支持了我们工作的每一个阶段，确保最终结果反映了父母和他们咨询的临床医生的经验、观点和表达的需求。
我们没有发现任何其他使用这种方法的资源，这可能解释了为什么没有发表的评估数据表明英国现有资源的影响。未来的移动应用程序应该由其预期的服务用户来设计和开发。
