University College Dublin, Ireland.
Autism. 2024 Nov;28(11):2738-2753. doi: 10.1177/13623613241243107. Epub 2024 Apr 24.
Hearing about parents' experiences of having their child recognised as autistic could help improve the supports offered to parents. Our article may also help guide future research on this topic. We made a list of the type of research that interested us. We searched the studies already completed, only studying the research that matched our interests. After reading the studies, we rated their quality using the Critical Appraisal Skills Programme tool.It became clear that parents went through four phases during the identification process. The first phase occurred before their child was identified as autistic. The second involved the actual assessment of their child. Parents' emotional reactions to the news were the focus of the third phase. The final phase occurred after their child was identified as autistic. We discuss the findings of our research. As there are sensitivities involved in conducting research on this topic, we identify how researchers can ensure that their research is of the best quality. We are committed to respecting the human rights of all involved, so we emphasise the need for professionals to develop good relationships with the parents of autistic children. Researchers have recently come to see autism as typical of human diversity. We encourage the professionals involved to adopt this understanding of autistic children and make practical suggestions to enable them to do so.
了解父母在孩子被诊断出自闭症时的经历,可以帮助改善为父母提供的支持。我们的文章也可能有助于指导这一主题的未来研究。我们列出了我们感兴趣的研究类型。我们只研究符合我们兴趣的已完成的研究。在阅读研究后,我们使用关键评估技能计划工具对其质量进行了评估。研究清楚地表明,父母在识别过程中经历了四个阶段。第一阶段发生在孩子被诊断出自闭症之前。第二阶段涉及对孩子的实际评估。父母对这一消息的情绪反应是第三阶段的重点。最后一个阶段发生在孩子被诊断出自闭症之后。我们讨论了我们研究的结果。由于在这个主题上进行研究存在敏感性,因此我们确定了研究人员如何确保他们的研究质量达到最佳水平。我们致力于尊重所有相关人员的人权,因此我们强调专业人员需要与自闭症儿童的父母建立良好的关系。研究人员最近开始将自闭症视为人类多样性的典型特征。我们鼓励相关专业人员采用这种对自闭症儿童的理解,并提出切实可行的建议,使他们能够这样做。