Krol Leonie, Hagmayer York, Steinbuechel Nicole von, Cunitz Katrin, Buchheim Anna, Koerte Inga K, Zeldovich Marina
Department of Psychology, Clinical Psychology, Experimental Psychopathology, and Psychotherapy, University of Marburg, 35037 Marburg, Germany.
Georg-Elias-Müller Institute for Psychology, Georg-August-University, 37073 Goettingen, Germany.
J Pers Med. 2024 Mar 23;14(4):336. doi: 10.3390/jpm14040336.
Assessment of health-related quality of life (HRQoL) after pediatric traumatic brain injury (TBI) has been limited in children and adolescents due to a lack of disease-specific instruments. To fill this gap, the Quality of Life after Traumatic Brain Injury for Children and Adolescents (QOLIBRI-KID/ADO) Questionnaire was developed for the German-speaking population. Reference values from a comparable general population are essential for comprehending the impact of TBI on health and well-being. This study examines the validity of the German QOLIBRI-KID/ADO in a general pediatric population in Germany and provides reference values for use in clinical practice. Overall, 1997 children and adolescents aged 8-17 years from the general population and 300 from the TBI population participated in this study. The questionnaire was tested for reliability and validity. A measurement invariance (MI) approach was used to assess the comparability of the HRQoL construct between both samples. Reference values were determined by percentile-based stratification according to factors that significantly influenced HRQoL in regression analyses. The QOLIBRI-KID/ADO demonstrated strong psychometric properties. The HRQoL construct was measured largely equivalently in both samples, and reference values could be provided. The QOLIBRI-KID/ADO was considered reliable and valid for assessing HRQoL in a general German-speaking pediatric population, allowing for clinically meaningful comparisons between general and TBI populations.
由于缺乏针对特定疾病的工具，儿童和青少年创伤性脑损伤（TBI）后健康相关生活质量（HRQoL）的评估一直受到限制。为了填补这一空白，为说德语的人群开发了儿童和青少年创伤性脑损伤后生活质量（QOLIBRI-KID/ADO）问卷。来自可比普通人群的参考值对于理解TBI对健康和幸福的影响至关重要。本研究检验了德语版QOLIBRI-KID/ADO在德国普通儿科人群中的有效性，并提供了可用于临床实践的参考值。总体而言，1997名8至17岁的普通人群儿童和青少年以及300名TBI人群儿童和青少年参与了本研究。对问卷进行了信度和效度测试。采用测量不变性（MI）方法评估两个样本之间HRQoL结构的可比性。根据回归分析中对HRQoL有显著影响的因素，通过基于百分位数的分层确定参考值。QOLIBRI-KID/ADO表现出强大的心理测量特性。两个样本中HRQoL结构的测量在很大程度上是等效的，可以提供参考值。QOLIBRI-KID/ADO被认为在评估说德语的普通儿科人群的HRQoL方面是可靠和有效的，能够在普通人群和TBI人群之间进行具有临床意义的比较。
