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用于测量面部皮肤癌手术后患者报告结局的 FACE-Q:跨文化验证

FACE-Q for Measuring Patient-reported Outcomes after Facial Skin Cancer Surgery: Cross-cultural Validation.

作者信息

Ottenhof Maarten J, Dobbs Thomas D, Veldhuizen Inge, Harrison Conrad J, Marges Michelle, Lee Erica H, Hoogbergen Maarten M, van der Hulst René R W J, Pusic Andrea L, Sidey-Gibbons Chris J

机构信息

From Patient-Reported Outcomes, Value & Experience (PROVE) Center, Department of Surgery, Brigham and Women's Hospital, Boston, Mass.

Department of Surgery, Harvard Medical School, Boston, Mass.

出版信息

Plast Reconstr Surg Glob Open. 2024 Apr 29;12(4):e5771. doi: 10.1097/GOX.0000000000005771. eCollection 2024 Apr.

Abstract

BACKGROUND

Facial skin cancer and its surgical treatment can affect health-related quality of life. The FACE-Q Skin Cancer Module is a patient-reported outcome measure that measures different aspects of health-related quality of life and has recently been translated into Dutch. This study aimed to evaluate the performance of the translated version in a Dutch cohort using modern psychometric measurement theory (Rasch).

METHODS

Dutch participants with facial skin cancer were prospectively recruited and asked to complete the translated FACE-Q Skin Cancer Module. The following assumptions of the Rasch model were tested: unidimensionality, local independence, and monotonicity. Response thresholds, fit statistics, internal consistency, floor and ceiling effects, and targeting were assessed for all scales and items within the scales. Responsiveness was tested for the "cancer worry" scale.

RESULTS

In total, 259 patients completed the preoperative questionnaire and were included in the analysis. All five scales assessed showed a good or sufficient fit to the Rasch model. Unidimensionality and monotonicity were present for all scales. Some items showed a local dependency. Most of the scales demonstrate ordered item thresholds and appropriate fit statistics.

CONCLUSIONS

The FACE-Q Skin Cancer Module is a well-designed patient-reported outcome measure that shows psychometric validity for the translated version in a Dutch cohort, using classical and modern test theory.

摘要

背景

面部皮肤癌及其外科治疗会影响与健康相关的生活质量。“面部皮肤癌生活质量量表(FACE-Q)”是一种患者报告结局测量工具,用于测量与健康相关生活质量的不同方面,最近已被翻译成荷兰语。本研究旨在使用现代心理测量理论(拉施模型)评估该翻译版本在荷兰队列中的性能。

方法

前瞻性招募患有面部皮肤癌的荷兰参与者,并要求他们完成翻译后的“面部皮肤癌生活质量量表(FACE-Q)”。测试了拉施模型的以下假设:单维性、局部独立性和单调性。评估了所有量表及其内部项目的反应阈值、拟合统计量、内部一致性、地板效应和天花板效应以及针对性。对“癌症担忧”量表进行了反应性测试。

结果

共有259名患者完成了术前问卷并纳入分析。所评估的所有五个量表均显示出对拉施模型的良好或充分拟合。所有量表均具有单维性和单调性。一些项目显示出局部依赖性。大多数量表显示出有序的项目阈值和适当的拟合统计量。

结论

“面部皮肤癌生活质量量表(FACE-Q)”是一种设计良好的患者报告结局测量工具,使用经典和现代测试理论,在荷兰队列中显示出翻译版本的心理测量有效性。

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本文引用的文献

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Rating scales and Rasch measurement.量表和 Rasch 测量。
Expert Rev Pharmacoecon Outcomes Res. 2011 Oct;11(5):571-85. doi: 10.1586/erp.11.59.

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