压力和自我效能感对自闭症儿童母亲生活质量的影响:基于协方差的结构方程模型(CB-SEM)方法。

Effects of stress and self-efficacy on quality of life of mothers with autistic children: Covariance-Based Structural Equation Modeling (CB-SEM) approach.

作者信息

Bee Wah Yap, Mohd Nasir Noor Nadia, Hadrawi Mohd Fikri, Kamaruddin Ainur Amira, Jannoo Zeinab, Afthanorhan Asyraf

机构信息

Faculty of Business, UNITAR International University, Petaling Jaya, Selangor, Malaysia.

Institute of Research Management and Innovation (IRMI), Universiti Teknologi MARA, Selangor, Malaysia.

出版信息

Belitung Nurs J. 2024 Apr 28;10(2):201-208. doi: 10.33546/bnj.3096. eCollection 2024.

Abstract

BACKGROUND

Mothers who have children with autism encounter significant difficulties in caring for their autistic youngsters, leading to higher stress levels and a reduced overall quality of life. External or internal factors can cause and respond to stress, affecting an individual's physical, psychological, and emotional health. Thus, it is crucial to examine the quality of life of mothers with autistic children.

OBJECTIVES

This study aimed to investigate the relationships between stress, self-efficacy, and quality of life (QoL) in mothers of children with autism.

METHODS

A cross-sectional study design was used. Self-administered questionnaires were distributed from October to November 2019 to mothers with autistic children using cluster sampling techniques to capture their demographics and perceptions of stress, self-efficacy, and QoL. The data analysis was performed using covariance-based structural equation modeling (CB-SEM).

RESULTS

Of the 290 questionnaires distributed, 238 (response rate of 82%) sets were returned, but only 181 questionnaires were usable for further analysis. The findings demonstrated a notable impact of stress and self-efficacy on quality of life and an adverse effect of stress on self-efficacy. Self-efficacy serves as an intermediary in the relationship between stress and quality of life.

CONCLUSION

In general, mothers of autistic children typically face moderate stress levels, but they have low levels of self-efficacy and quality of life. Mothers of children with autism need assistance and support from healthcare professionals, such as doctors, nurses, and psychiatrists, so that they can bear the challenges of raising children with special needs and enjoy a higher standard of living with less emotional and physical strain.

摘要

背景

自闭症患儿的母亲在照顾自闭症子女时面临重大困难,导致压力水平升高,整体生活质量下降。外部或内部因素可引发压力并对压力做出反应,影响个体的身体、心理和情绪健康。因此,研究自闭症患儿母亲的生活质量至关重要。

目的

本研究旨在调查自闭症患儿母亲的压力、自我效能感和生活质量(QoL)之间的关系。

方法

采用横断面研究设计。2019年10月至11月,通过整群抽样技术向自闭症患儿母亲发放自填式问卷,以获取她们的人口统计学信息以及对压力、自我效能感和生活质量的看法。使用基于协方差的结构方程模型(CB-SEM)进行数据分析。

结果

在发放的290份问卷中,回收了238份(回复率为82%),但只有181份问卷可用于进一步分析。研究结果表明,压力和自我效能感对生活质量有显著影响,压力对自我效能感有负面影响。自我效能感在压力与生活质量的关系中起中介作用。

结论

总体而言,自闭症患儿的母亲通常面临中等程度的压力,但她们的自我效能感和生活质量水平较低。自闭症患儿的母亲需要医生、护士和精神科医生等医疗专业人员的帮助和支持,以便她们能够承受抚养特殊需求儿童的挑战,在减少身心压力的情况下享受更高的生活水平。

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