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实施性别肯定护理中患者报告结局测量的实用指南:评估可接受性、适当性和可行性。

Practical guide to implementing patient-reported outcome measures in gender-affirming care: evaluating acceptability, appropriateness and feasibility.

机构信息

Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences, University of Oxford, Oxford, UK

Temerty Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada.

出版信息

BMJ Open Qual. 2024 May 1;13(2):e002677. doi: 10.1136/bmjoq-2023-002677.

Abstract

OBJECTIVE

Assess acceptability, appropriateness and feasibility of the Practical Guide to Implementing patient-reported outcome measures (PROMs) in Gender-Affirming Care (PG-PROM-GAC) from a sample of patients and healthcare professionals.

DESIGN

Cross-sectional study conducted August-October 2023.

SETTING

Participants were recruited from a National Health Service (NHS) gender clinic.

PARTICIPANTS

Patient participants seeking care and healthcare professionals working at an NHS gender clinic were eligible for participation. The PG-PROM-GAC was sent to participants via email for review.

OUTCOME MEASURES

Three validated tools to measure acceptability, appropriateness and feasibility were administered: the acceptability of intervention measure (AIM), intervention appropriateness measure (IAM) and feasibility of intervention measure (FIM). The percentage of participants indicating agreement or disagreement with items on the AIM, IAM and FIM was calculated.

RESULTS

A total of 132 transgender and gender diverse (TGD) patients (mean age, SD: 33, 14) and 13 gender-affirming healthcare professionals (mean age, SD: 43, 11) completed the AIM, IAM and FIM, representing a range of gender identities. The cumulative percentage of patients indicating agree or strongly agree on the AIM, IAM and FIM for the patient-relevant strategies in the PG-PROM-GAC was over 50% for each item. The cumulative percentage of patients indicating disagree or strongly disagree on the AIM, IAM and FIM for the PG-PROM-GAC was less than 20% for each item. The cumulative percentage of healthcare professionals indicating agree or strongly agree on the AIM, IAM and FIM for the healthcare professional-relevant strategies in the PG-PROM-GAC was over 38% for each item. The cumulative percentage of healthcare professionals indicating disagree or strongly disagree on the AIM, IAM and FIM for the PG-PROM-GAC was less than 15% for each item.

CONCLUSIONS

Gender-affirming healthcare professionals and TGD patients find the PG-PROM-GAC acceptable, appropriate and feasible. The PG-PROM-GAC is ready-to-use for clinicians, policy-makers and researchers committed to service improvement for gender-affirming care.

摘要

目的

评估患者和医疗保健专业人员样本对实施性别肯定护理中的患者报告结局测量实用指南(PG-PROM-GAC)的可接受性、适宜性和可行性。

设计

2023 年 8 月至 10 月进行的横断面研究。

设置

参与者从国家卫生服务(NHS)性别诊所招募。

参与者

寻求护理的患者参与者和在 NHS 性别诊所工作的医疗保健专业人员有资格参加。PG-PROM-GAC 通过电子邮件发送给参与者进行审查。

结果

使用三种经过验证的工具来衡量可接受性、适宜性和可行性:干预措施可接受性测量(AIM)、干预措施适宜性测量(IAM)和干预措施可行性测量(FIM)。计算参与者对 AIM、IAM 和 FIM 上项目表示同意或不同意的百分比。

结果

共有 132 名跨性别和性别多样化(TGD)患者(平均年龄,标准差:33,14)和 13 名性别肯定的医疗保健专业人员(平均年龄,标准差:43,11)完成了 AIM、IAM 和 FIM,代表了一系列性别认同。患者对 PG-PROM-GAC 中与患者相关策略的 AIM、IAM 和 FIM 表示同意或强烈同意的累积百分比每项均超过 50%。患者对 PG-PROM-GAC 的 AIM、IAM 和 FIM 表示不同意或强烈不同意的累积百分比每项均小于 20%。医疗保健专业人员对 PG-PROM-GAC 中与医疗保健专业人员相关策略的 AIM、IAM 和 FIM 表示同意或强烈同意的累积百分比每项均超过 38%。医疗保健专业人员对 PG-PROM-GAC 的 AIM、IAM 和 FIM 表示不同意或强烈不同意的累积百分比每项均小于 15%。

结论

性别肯定的医疗保健专业人员和 TGD 患者认为 PG-PROM-GAC 是可接受、适宜和可行的。PG-PROM-GAC 已准备好供致力于改善性别肯定护理服务的临床医生、政策制定者和研究人员使用。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/82c7/11086515/46a317e67025/bmjoq-2023-002677f01.jpg

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