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新冠疫情期间“超出能力范围的照料”:来自IDEAL队列研究的痴呆症患者的适应力与家庭照料者

'Caring beyond capacity' during the coronavirus pandemic: resilience and family carers of people with dementia from the IDEAL cohort.

作者信息

Stapley Sally, Pentecost Claire, Collins Rachel, Quinn Catherine, Dawson Eleanor, Thom Jeanette M, Clare Linda

机构信息

University of Exeter, UK.

University of Bradford, UK.

出版信息

Int J Care Caring. 2024 May;8(2):246-263. doi: 10.1332/239788221X16819328227036.

DOI:10.1332/239788221X16819328227036
PMID:38706535
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7615928/
Abstract

Family carers of people with dementia have reported increased caring demands during the COVID-19 pandemic. The aim of this qualitative study was to explore seven family carers' accounts of dementia caregiving one year into the COVID-19 pandemic in England in relation to carer resilience. Themes described the complex challenges of caring during the pandemic, with interviewees burned out and 'caring beyond capacity' due to unmet needs within the caring role, therein highlighting the limitations of building individual resilience only. Timely practical support for carers is essential to protect their well-being and to ward against the potential consequences of carer burnout.

摘要

痴呆症患者的家庭护理人员报告称,在新冠疫情期间护理需求有所增加。这项定性研究的目的是探讨七名家庭护理人员在英国新冠疫情爆发一年后对痴呆症护理的描述,以及护理人员的复原力。研究主题描述了疫情期间护理工作面临的复杂挑战,受访者因护理角色中未得到满足的需求而精疲力竭、“超能力护理”,这凸显了仅培养个人复原力的局限性。及时为护理人员提供实际支持对于保护他们的福祉以及防止护理人员倦怠的潜在后果至关重要。

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本文引用的文献

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Effects of social restrictions on people with dementia and carers during the pre-vaccine phase of the COVID-19 pandemic: Experiences of IDEAL cohort participants.COVID-19 大流行疫苗接种前期对痴呆症患者及其照护者的社会隔离影响:IDEAL 队列参与者的体验。
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Int J Geriatr Psychiatry. 2022 May;37(5). doi: 10.1002/gps.5708.
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Resilience and supporting people living with dementia during the time of COVID-19; A qualitative study.新冠疫情期间的韧性和对痴呆症患者的支持:一项定性研究。
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Impact of COVID-19 on the Health and Well-being of Informal Caregivers of People with Dementia: A Rapid Systematic Review.2019冠状病毒病对痴呆症患者非正式照料者健康与福祉的影响:一项快速系统评价
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