Long Kristin A, Marsland Anna L, Wright Amanda, Hinds Pamela
Boston University, Boston, MA, USA
University of Pittsburgh, Pittsburgh, PA, USA.
J Pediatr Oncol Nurs. 2015 Jan-Feb;32(1):21-31. doi: 10.1177/1043454214555194. Epub 2014 Nov 12.
More than 14,000 children are diagnosed with cancer in the United States each year. Prolonged, intensive treatment protocols disrupt the entire family, including siblings. Here, we employed grounded theory methodology to examine the experiences of 30 nonbereaved adolescent siblings of children receiving cancer treatment. The central organizing theme of the emergent data is "creating a tenuous balance." Contributing themes include (a) knowing something is seriously wrong, (b) figuring out the meaning of cancer, (c) adapting to changes in personal and family life, and (d) handling emotional reactions to cancer. Overall, findings suggest an ongoing, active process by which siblings notice and adapt to the many unexpected and taxing aspects of their brother's or sister's cancer diagnosis and treatment, including shifts in how the family system operates. Findings highlight the important role of siblings in family-centered cancer care. Future, larger scale research should develop targeted interventions for these siblings.
在美国,每年有超过14000名儿童被诊断出患有癌症。长期、密集的治疗方案会扰乱整个家庭,包括兄弟姐妹。在此,我们采用扎根理论方法来研究30名未失去亲人的、其兄弟姐妹正在接受癌症治疗的青少年的经历。新出现的数据的核心组织主题是“建立一种脆弱的平衡”。促成主题包括:(a)知道情况严重不对;(b)弄清楚癌症的意义;(c)适应个人和家庭生活的变化;以及(d)应对对癌症的情绪反应。总体而言,研究结果表明,兄弟姐妹会经历一个持续、积极的过程,在此过程中他们会注意到并适应其兄弟或姐妹癌症诊断和治疗中许多意想不到且繁重的方面,包括家庭系统运作方式的转变。研究结果凸显了兄弟姐妹在以家庭为中心的癌症护理中的重要作用。未来,规模更大的研究应为这些兄弟姐妹制定有针对性的干预措施。