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“理解她为何不得不离开我”:宗教与灵性在因孩子患癌离世而悲痛的父母的叙事中的作用

"Understanding why she had to leave me": The roles of religion and spirituality in narratives of parents grieving the loss of a child to cancer.

作者信息

Superdock Alexandra K, Trejo Mariela, Yang Yenny, Torres Carlos, Blazin Lindsay J, Baker Justin N, Spraker-Perlman Holly L, Kaye Erica C

机构信息

Department of Oncology, St. Jude Children's Research Hospital, Memphis, Tennessee, USA.

School of Medicine, University of Maryland, Baltimore, Maryland, USA.

出版信息

Death Stud. 2025;49(5):621-632. doi: 10.1080/07481187.2024.2348059. Epub 2024 May 6.

Abstract

Religion and spirituality often influence how people experience illness, death, and grief. The roles of religion and spirituality for parents who have lost a child to cancer remain underexplored. This study aimed to describe how cancer-bereaved parents talk about religion and spirituality when reflecting on their experiences. Participants whose children died of cancer one to six years prior to participation completed a one-on-one semi-structured interview. Interview transcripts underwent qualitative analysis. Content pertaining to religion and/or spirituality underwent subsequent in-depth analysis to identify themes. Of 30 interviews analyzed, 28 contained religion/spirituality content. Four themes arose: (1) life after death, (2) divine control, (3) evolution of faith after loss, and (4) religious and spiritual interactions within the medical community. The absence of supports for religious and spiritual needs represents a gap in bereavement care. Future work should clarify needs and explore potential interventions.

摘要

宗教和灵性常常影响人们对疾病、死亡和悲痛的体验。宗教和灵性在孩子因癌症去世的父母身上所起的作用仍未得到充分探索。本研究旨在描述失去孩子的癌症患者父母在反思自身经历时如何谈论宗教和灵性。在参与研究前一至六年孩子死于癌症的参与者完成了一对一的半结构化访谈。访谈记录进行了定性分析。与宗教和/或灵性相关的内容随后进行了深入分析以确定主题。在分析的30次访谈中,28次包含宗教/灵性内容。出现了四个主题:(1)死后的生活,(2)神的掌控,(3)失去后的信仰演变,以及(4)医疗社区内的宗教和灵性互动。对宗教和灵性需求缺乏支持代表了丧亲照护中的一个缺口。未来的工作应明确需求并探索潜在的干预措施。

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