Pohlkamp Lilian, Sveen Josefin, Kreicbergs Ulrika, Lövgren Malin
Department of Health Care Sciences, Palliative Research Centre, Ersta Sköndal Bräcke University College, Stockholm, Sweden.
Department of Neuroscience, Psychiatry, Uppsala University, Uppsala, Sweden.
Palliat Support Care. 2021 Oct;19(5):524-529. doi: 10.1017/S1478951520001212.
The loss of a child is a devastating event, and bereaved parents often suffer intense and long-lasting grief reactions and are at risk for psychological symptoms. More knowledge about how parents cope with grief may improve the support to bereaved parents. This study, therefore, aimed to explore parents' views on what facilitated or complicated their grief coping after losing a child to cancer.
This study was derived from a nationwide postal survey. Cancer-bereaved parents (n = 161) provided written responses to two open-ended questions: "Is there anything that has helped you cope with your grief after your child's death?" and "Is there anything that made it difficult for you to cope with your grief?" Content analysis was used to analyze the responses.
Parents reported that a supportive social network of family and friends, and having remaining children, facilitated their coping with grief. Meeting professional counselors and meeting other bereaved parents, connecting to memories of the deceased child in various contexts, including school and pediatric care settings, were also reported facilitating grief coping. Parents stated that the following experiences had complicated grief coping: additional losses in their family or social network; not being able to share emotions with their partner; when they perceived that friends, relatives, or colleagues lacked empathy or patience; when they felt challenging demands from employers at a too early stage.
This study contributes to the understanding of parents' grief experiences and what has facilitated or complicated their coping with grief, which can help health care professionals and others improve bereavement support services.
孩子的离世是一场毁灭性的事件,痛失孩子的父母常常遭受强烈且持久的悲伤反应,并有出现心理症状的风险。更多地了解父母如何应对悲伤,可能会改善对痛失亲人父母的支持。因此,本研究旨在探讨父母对于孩子因癌症离世后,哪些因素有助于或使他们的悲伤应对变得复杂的看法。
本研究源自一项全国性的邮政调查。痛失孩子的父母(n = 161)对两个开放式问题给出了书面回答:“孩子去世后,有没有什么事情帮助你应对悲伤?”以及“有没有什么事情让你难以应对悲伤?”采用内容分析法对回答进行分析。
父母们表示,家人和朋友组成的支持性社交网络以及尚有其他子女,有助于他们应对悲伤。与专业咨询师会面、与其他痛失亲人的父母会面、在包括学校和儿科护理场所等各种情境中回忆已故孩子,也被报告有助于悲伤应对。父母们称,以下经历使悲伤应对变得复杂:家庭或社交网络中的其他损失;无法与伴侣分享情感;当他们觉得朋友、亲戚或同事缺乏同理心或耐心时;当他们在过早阶段感受到来自雇主的挑战性要求时。
本研究有助于理解父母的悲伤经历以及哪些因素有助于或使他们的悲伤应对变得复杂,这可以帮助医护人员和其他人改善丧亲支持服务。