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痴呆患者的预先指示需要具有完全的法律地位。

Advance directives need full legal status in persons with dementia.

机构信息

New York University.

出版信息

Nurs Ethics. 2024 Nov;31(7):1247-1257. doi: 10.1177/09697330241247320. Epub 2024 May 6.

DOI:10.1177/09697330241247320
PMID:38711348
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11812277/
Abstract

Currently, in the United States, there is no legal obligation for medical professionals or civil courts to uphold patients' Advance Directives (ADs) regarding end-of-life care. The applicability and standing of ADs prepared by Alzheimer's patients is a persistent issue in bioethics. Those who argue against giving ADs full status take two main approaches: (1) appealing to beneficence on behalf of the Alzheimer's patient and (2) claiming that there is no longer any personal equivalence between the AD's creator and the subject of the AD. In this paper, I present profound arguments against both approaches. Firstly, I argue that the principle of beneficence cannot apply in the case of Alzheimer's patients, and, secondly, that the moral and legal authority of the AD need not depend on strict equivalence of personal identity. I conclude by arguing that valid ADs protect the dignity and autonomy of Alzheimer's patients and that, therefore, there are moral obligations to uphold ADs which should be reflected in public policy and legislation.

摘要

目前,在美国,医学专业人员或民事法庭没有法律义务遵守患者关于临终关怀的预先指示 (AD)。阿尔茨海默病患者制定的 AD 的适用性和地位是生物伦理学中的一个持续存在的问题。那些反对给予 AD 完全地位的人采取了两种主要方法:(1) 代表阿尔茨海默病患者呼吁善行,(2) 声称 AD 的制定者和 AD 的主体之间不再存在任何个人等同性。在本文中,我提出了反对这两种方法的深刻论据。首先,我认为,在阿尔茨海默病患者的情况下,不能适用善行原则,其次,AD 的道德和法律权威不必依赖于严格的个人身份等同性。我最后认为,有效的 AD 保护了阿尔茨海默病患者的尊严和自主权,因此,存在维护 AD 的道德义务,这应反映在公共政策和立法中。

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Advance directives need full legal status in persons with dementia.痴呆患者的预先指示需要具有完全的法律地位。
Nurs Ethics. 2024 Nov;31(7):1247-1257. doi: 10.1177/09697330241247320. Epub 2024 May 6.
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本文引用的文献

1
The harm principle, personal identity and identity-relative paternalism.伤害原则、个人认同与认同相关的家长主义。
J Med Ethics. 2023 Jun;49(6):393-402. doi: 10.1136/jme-2022-108418. Epub 2023 Jan 20.
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Advance directives among cognitively impaired persons who had an amyloid PET scan and their care partners: a mixed-methods study.认知障碍且进行过淀粉样 PET 扫描的患者及其照护者的预先指示:一项混合方法研究。
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Supported Decision-Making for People with Dementia Should Focus on Their Values.为痴呆症患者提供支持性决策应关注他们的价值观。
Am J Bioeth. 2021 Nov;21(11):19-21. doi: 10.1080/15265161.2021.1980150.
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Demented patients and the quandaries of identity: setting the problem, advancing a proposal.错乱的患者与身份的困惑:问题的设定,建议的提出。
Hist Philos Life Sci. 2021 Feb 15;43(1):21. doi: 10.1007/s40656-021-00365-y.
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Comprehensive Review on Alzheimer's Disease: Causes and Treatment.阿尔茨海默病的综合综述:病因与治疗。
Molecules. 2020 Dec 8;25(24):5789. doi: 10.3390/molecules25245789.
6
The Efficacy and Safety of Tube Feeding in Advanced Dementia Patients: A Systemic Review and Meta-Analysis Study.晚期痴呆患者管饲的疗效和安全性:一项系统评价与荟萃分析研究
J Am Med Dir Assoc. 2021 Feb;22(2):357-363. doi: 10.1016/j.jamda.2020.06.035. Epub 2020 Jul 29.
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Overriding advance directives: A 20-year legal and ethical overview.超越预先指令:20年的法律与伦理概述。
J Healthc Risk Manag. 2019 Oct;39(2):11-18. doi: 10.1002/jhrm.21388. Epub 2019 Aug 21.
8
Advance decision-making in mental health - Suggestions for legal reform in England and Wales.心理健康预先决策 - 英格兰和威尔士法律改革建议。
Int J Law Psychiatry. 2019 May-Jun;64:162-177. doi: 10.1016/j.ijlp.2019.02.002. Epub 2019 Apr 12.
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Advance Directives and the Descendant Argument.预立医疗指示与后代论证
HEC Forum. 2018 Mar;30(1):1-11. doi: 10.1007/s10730-017-9334-3.
10
Approximately One In Three US Adults Completes Any Type Of Advance Directive For End-Of-Life Care.大约每三个美国成年人中就有一个完成了任何类型的临终关怀预先指示。
Health Aff (Millwood). 2017 Jul 1;36(7):1244-1251. doi: 10.1377/hlthaff.2017.0175.