意大利儿科姑息治疗需求儿童数量的估计。
An estimation of the number of children requiring pediatric palliative care in Italy.
机构信息
Pediatric Pain and Palliative Care Service, Department of Women's and Children's Health, University Hospital Padua, Via Ospedale 59, Padua, Italy.
General Direction of Health Planning of the Italian Ministry of Health, Rome, Italy.
出版信息
Ital J Pediatr. 2021 Jan 7;47(1):4. doi: 10.1186/s13052-020-00952-y.
BACKGROUND
Pediatric palliative care (PPC) addresses the physical and psychological needs of children suffering from life-limiting diseases. To define prevention and educational plans and to properly allocate resources, a precise estimation of the PPC burden is required.
OBJECTIVES
To estimate the current number of children requiring PPC in Italy, useful to assist policy-makers and healthcare bodies in the organization and allocation of PPC resources.
METHODS
Literature data, The Global Atlas of Palliative Care at the End of Life and Italian national databases have been consulted.
RESULTS
According to our estimation, at present, a total of 20,540-32,864 children in Italy require PPC (34-54 children/100,000 inhabitants) of whom 18 children/100,000 inhabitants require specialized PPC.
CONCLUSIONS
The present work is a fundamental tool to be used by the institutions, the local networks of PPC and the health programmers when formulating organizational models and care plans consistent with the actual need for PPC.
背景
儿科舒缓治疗（PPC）旨在满足患有危及生命疾病的儿童的身体和心理需求。为了制定预防和教育计划并合理分配资源，需要对 PPC 负担进行精确估计。
目的
估计意大利目前需要 PPC 的儿童数量，这有助于政策制定者和医疗保健机构组织和分配 PPC 资源。
方法
查阅了文献数据、全球生命末期舒缓治疗地图集和意大利国家数据库。
结果
根据我们的估计，目前意大利共有 20540-32864 名儿童需要 PPC（34-54 名儿童/每 10 万人），其中 18 名儿童/每 10 万人需要专门的 PPC。
结论
本研究为机构、PPC 地方网络和卫生规划人员在制定符合实际 PPC 需求的组织模式和护理计划时提供了重要工具。
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