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意大利儿科姑息治疗需求儿童数量的估计。

An estimation of the number of children requiring pediatric palliative care in Italy.

机构信息

Pediatric Pain and Palliative Care Service, Department of Women's and Children's Health, University Hospital Padua, Via Ospedale 59, Padua, Italy.

General Direction of Health Planning of the Italian Ministry of Health, Rome, Italy.

出版信息

Ital J Pediatr. 2021 Jan 7;47(1):4. doi: 10.1186/s13052-020-00952-y.

DOI:10.1186/s13052-020-00952-y
PMID:33413481
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7791880/
Abstract

BACKGROUND

Pediatric palliative care (PPC) addresses the physical and psychological needs of children suffering from life-limiting diseases. To define prevention and educational plans and to properly allocate resources, a precise estimation of the PPC burden is required.

OBJECTIVES

To estimate the current number of children requiring PPC in Italy, useful to assist policy-makers and healthcare bodies in the organization and allocation of PPC resources.

METHODS

Literature data, The Global Atlas of Palliative Care at the End of Life and Italian national databases have been consulted.

RESULTS

According to our estimation, at present, a total of 20,540-32,864 children in Italy require PPC (34-54 children/100,000 inhabitants) of whom 18 children/100,000 inhabitants require specialized PPC.

CONCLUSIONS

The present work is a fundamental tool to be used by the institutions, the local networks of PPC and the health programmers when formulating organizational models and care plans consistent with the actual need for PPC.

摘要

背景

儿科舒缓治疗(PPC)旨在满足患有危及生命疾病的儿童的身体和心理需求。为了制定预防和教育计划并合理分配资源,需要对 PPC 负担进行精确估计。

目的

估计意大利目前需要 PPC 的儿童数量,这有助于政策制定者和医疗保健机构组织和分配 PPC 资源。

方法

查阅了文献数据、全球生命末期舒缓治疗地图集和意大利国家数据库。

结果

根据我们的估计,目前意大利共有 20540-32864 名儿童需要 PPC(34-54 名儿童/每 10 万人),其中 18 名儿童/每 10 万人需要专门的 PPC。

结论

本研究为机构、PPC 地方网络和卫生规划人员在制定符合实际 PPC 需求的组织模式和护理计划时提供了重要工具。

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1
An estimation of the number of children requiring pediatric palliative care in Italy.意大利儿科姑息治疗需求儿童数量的估计。
Ital J Pediatr. 2021 Jan 7;47(1):4. doi: 10.1186/s13052-020-00952-y.
2
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The specialized pediatric palliative care service in Italy: how is it working? Results of the nationwide PalliPed study.意大利的专业儿科姑息治疗服务:它是如何运作的?全国 PalliPed 研究的结果。
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本文引用的文献

1
A Tool for the Evaluation of Clinical Needs and Eligibility to Pediatric Palliative Care: The Validation of the ACCAPED Scale.用于评估儿科姑息治疗临床需求和资格的工具:ACCAPED 量表的验证。
J Palliat Med. 2021 Feb;24(2):205-210. doi: 10.1089/jpm.2020.0148. Epub 2020 Jul 8.
2
Training in pediatric palliative care in Italy: still much to do.意大利儿科姑息治疗培训:仍有许多工作要做。
Ann Ist Super Sanita. 2019 Jul-Sep;55(3):240-245. doi: 10.4415/ANN_19_03_07.
3
A consensus conference report on defining the eligibility criteria for pediatric palliative care in Italy.意大利制定儿科姑息治疗资格标准的共识会议报告。
Ital J Pediatr. 2019 Jul 22;45(1):89. doi: 10.1186/s13052-019-0681-3.
4
Association Between Palliative Care and Patient and Caregiver Outcomes: A Systematic Review and Meta-analysis.姑息治疗与患者及照护者结局之间的关联:一项系统评价与荟萃分析
JAMA. 2016 Nov 22;316(20):2104-2114. doi: 10.1001/jama.2016.16840.