Ayoub Maria, Udo Camilla, Årestedt Kristofer, Kreicbergs Ulrika, Lövgren Malin
School of Health and Welfare, Dalarna University, 791 88 Falun, Sweden.
Department of Health Care Sciences, Palliative Research Centre, Marie Cederschiöld University, 116 28 Stockholm, Sweden.
Children (Basel). 2024 Jan 12;11(1):95. doi: 10.3390/children11010095.
Childhood cancer impacts the family system and has psychosocial consequences for all family members. For the parents, the ill child, and the siblings to be able to adjust to this challenging situation, the whole family needs access to psychosocial support. However, only a few such family interventions in pediatric oncology have been evaluated. The aim of this study was to explore the potential effects of a family-centered intervention, the Family Talk Intervention (FTI), in pediatric oncology from the parents' perspectives.
A concurrent mixed methods design was used for this study. Data were derived from a pilot study of 26 families recruited from one pediatric oncology center in Sweden. This study focused on questionnaire and interview data from 52 parents.
After participation in FTI, the parents felt more satisfied with the conversations within the family about the illness. FTI also contributed to strengthened family togetherness, including more open communication and improved family relations, as described by the parents. Parents further expressed that they felt more empowered in their parenting role following FTI.
The findings regarding FTI's ability to improve family communication and family relations, thus strengthening family togetherness in families with childhood cancer, are promising. This provides motivation for a large-scale study of FTIs in pediatric oncology.
儿童癌症会影响家庭系统，并对所有家庭成员产生心理社会影响。为了让父母、患病儿童和兄弟姐妹能够适应这种具有挑战性的情况，整个家庭需要获得心理社会支持。然而，儿科肿瘤学中这类家庭干预措施仅有少数得到了评估。本研究的目的是从父母的角度探讨以家庭为中心的干预措施——家庭谈话干预（FTI）在儿科肿瘤学中的潜在效果。
本研究采用了同步混合方法设计。数据来自于对瑞典一个儿科肿瘤中心招募的26个家庭进行的一项试点研究。本研究聚焦于52位父母的问卷调查和访谈数据。
参与FTI后，父母对家庭内部关于疾病的对话更加满意。如父母所述，FTI还促进了家庭凝聚力的增强，包括沟通更加开放以及家庭关系得到改善。父母还表示，参与FTI后他们在育儿角色中感觉更有能力。
关于FTI能够改善家庭沟通和家庭关系，从而增强患有儿童癌症家庭的家庭凝聚力的研究结果很有前景。这为在儿科肿瘤学中对FTI进行大规模研究提供了动力。
