自闭症谱系障碍儿童父母的附属耻辱感与家庭生活质量的关系：育儿自我效能感的中介作用。
Relationship between affiliate stigma and family quality of life among parents of children with autism spectrum disorders: The mediating role of parenting self-efficacy.
机构信息
School of Nursing, Sun Yat-sen University, Guangzhou, China.
Child Development and Behavior Center, The Third Affiliated Hospital, Sun Yat-sen University, Guangzhou, China.
出版信息
Arch Psychiatr Nurs. 2024 Apr;49:23-31. doi: 10.1016/j.apnu.2024.01.011. Epub 2024 Jan 20.
BACKGROUND
The parents of children with autism spectrum disorder (ASD) are under great pressure and experience discrimination in their daily lives, which affects their family quality of life (FQOL).
OBJECTIVE
METHODS: A total of 237 parents of children with ASD were recruited in a university-affiliated hospital in Guangzhou, China, from October 2020 to April 2021 by convenience sampling. The Affiliate Stigma Scale, Parenting Sense of Competence Scale and Beach Center Family Quality of Life Scale were employed for data collection.
RESULTS
The results showed that affiliate stigma negatively predicts total FQOL and the dimensions of FQOL through both a direct effect and an indirect effect through parenting self-efficacy.
CONCLUSIONS
The findings suggest that affiliate stigma is an important predictor of FQOL, and interventions to reduce affiliate stigma and strengthen parenting self-efficacy might be effective in improving FQOL in the parents of children with ASD.
背景
自闭症谱系障碍（ASD）儿童的父母在日常生活中承受着巨大的压力，并遭受歧视，这影响了他们的家庭生活质量（FQOL）。
目的
本研究旨在通过便利抽样法，于 2020 年 10 月至 2021 年 4 月期间，在中国广州的一家大学附属医院招募了 237 名 ASD 儿童的父母。采用附属耻辱量表、育儿自我效能感量表和海滩中心家庭生活质量量表收集数据。
结果
研究结果表明，附属耻辱感通过直接影响和通过育儿自我效能感的间接影响，对总 FQOL 和 FQOL 的各个维度均具有负向预测作用。
结论
这些发现表明，附属耻辱感是 FQOL 的一个重要预测因素，减少附属耻辱感和增强育儿自我效能感的干预措施可能有助于改善 ASD 儿童父母的 FQOL。
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