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肾脏姑息治疗的实施——从美国退伍军人事务部吸取的经验教训

Implementation of kidney palliative care-lessons learned from the US Department of Veterans Affairs.

作者信息

Palevsky Paul M, Shreve Scott, Wong Susan P Y

机构信息

1National Kidney Program, Department of Veterans Affairs, Washington, DC, USA.

National Kidney Program, Department of Veterans Affairs, Washington, DC, USA; Kidney Medicine Section, Medical Service, VA Pittsburgh Healthcare System, Pittsburgh, PA, USA; Renal-Electrolyte Division, Department of Medicine, University of Pittsburgh School of Medicine, Pittsburgh, PA, USA.

出版信息

Ann Palliat Med. 2024 Jul;13(4):858-868. doi: 10.21037/apm-23-584. Epub 2024 Apr 25.

Abstract

Advanced kidney disease is a progressive life-limiting illness associated with high symptom burden, disability, and highly intensive care near the end of life. There is growing interest in integrating palliative care principles into the care of patients with advanced kidney disease to improve care and outcomes for these patients. The United States (US) Department of Veterans Affairs (VA) has been a leader in advancing palliative care initiatives across its health system and whose experience and approach may be instructive to other health systems seeking to develop kidney palliative care (KPC) services. Herein, we review current KPC programs in the VA and highlight the different models of care that programs have been adopted and how key components of goals of care conversations and advance care planning, symptom management, multidisciplinary care, patient selection, and quality improvement have been implemented across programs. VA KPC programs have adopted "parallel", "merged", and "embedded" models of KPC that reflect the different configurations of partnerships between nephrology and palliative care providers to deliver KPC. A primary service of VA KPC programs is providing goals of care conversations and advance care planning to referred patients and systematically documenting the outcomes of these discussions in standardized note templates in the electronic medical record. Symptom management is delivered by KPC providers through regular shared or sequential visits with patients' nephrology providers and is guided by patient responses to validated symptom surveys. Programs are staffed by allied health professionals, such as chaplains, pharmacists, social workers, and dieticians, to provide whole-person care and regularly huddle with nephrology staff to reach a shared understanding of each patient's care needs and plan. KPC programs implement champions who select patients in greatest need of KPC using a combination of clinical events that trigger referral for KPC and validated mortality risk prediction scores that are automatically generated in each patient's medical record. KPC programs also routinely collect clinical, patient-reported, process, and care quality measures to assess its services. The experiences of the VA highlight novel approaches that strive to close the care gaps in meeting the KPC needs of patients with advanced kidney disease.

摘要

晚期肾病是一种渐进性的危及生命的疾病,伴有高症状负担、残疾,且在生命末期需要高度密集的护理。将姑息治疗原则纳入晚期肾病患者的护理中,以改善这些患者的护理和预后,这一兴趣正与日俱增。美国退伍军人事务部(VA)一直是在其整个医疗系统推进姑息治疗倡议的领导者,其经验和方法可能对其他寻求发展肾脏姑息治疗(KPC)服务的医疗系统具有指导意义。在此,我们回顾了VA目前的KPC项目,并强调了各项目所采用的不同护理模式,以及护理目标对话和预先护理计划、症状管理、多学科护理、患者选择和质量改进等关键组成部分在各项目中的实施情况。VA的KPC项目采用了KPC的“并行”“合并”和“嵌入”模式,这些模式反映了肾病学和姑息治疗提供者之间不同的合作配置,以提供KPC。VA KPC项目的一项主要服务是为转诊患者提供护理目标对话和预先护理计划,并在电子病历的标准化记录模板中系统地记录这些讨论的结果。症状管理由KPC提供者通过与患者的肾病学提供者定期进行联合或序贯访视来提供,并以患者对经过验证的症状调查的反应为指导。各项目由诸如牧师、药剂师、社会工作者和营养师等专职医疗专业人员配备人员,以提供全人护理,并定期与肾病学工作人员碰头,以共同了解每位患者的护理需求并制定计划。KPC项目实施负责人,他们使用触发KPC转诊的临床事件和在每位患者病历中自动生成的经过验证的死亡风险预测评分相结合的方式,挑选最需要KPC的患者。KPC项目还定期收集临床、患者报告、流程和护理质量指标,以评估其服务。VA的经验突出了为弥合满足晚期肾病患者KPC需求方面的护理差距而努力的新方法。

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