参与儿童姑息治疗的专业人员的工作相关生活质量：一项重复横断面比较有效性研究。
Work-related quality of life in professionals involved in pediatric palliative care: a repeated cross-sectional comparative effectiveness study.
作者信息
Gerber Anne-Kathrin, Feuz Ursula, Zimmermann Karin, Mitterer Stefan, Simon Michael, von der Weid Nicolas, Bergsträsser Eva
机构信息
Institute of Nursing Science, University of Basel, Basel, Switzerland.
Division of Pediatric Emergency Medicine, Department of Pediatrics, Inselspital, Bern University Hospital, University of Bern, Bern, Switzerland.
出版信息
Palliat Care Soc Pract. 2024 May 9;18:26323524241247857. doi: 10.1177/26323524241247857. eCollection 2024.
BACKGROUND
Working in pediatric palliative care (PPC) impacts healthcare and allied professionals' work-related quality of life (QoL). Professionals who lack specific PPC training but who regularly provide services to the affected children have articulated their need for support from specialized PPC (SPPC) teams.
OBJECTIVES
This study had two objectives: (1) to evaluate whether the availability of a SPPC team impacted the work-related QoL of professionals not specialized in PPC; and (2) to explore the work-related QoL of professionals working in PPC without specialized training.
DESIGN
Repeated cross-sectional comparative effectiveness design.
METHODS
One hospital with an established SPPC program and affiliated institutions provided the intervention group (IG). Three hospitals and affiliated institutions where generalist PPC was offered provided the comparison group (CG). Data were collected by paper-pencil questionnaire in 2021 and 2022. The Professional Quality of Life (ProQOL 5) questionnaire was used to assess work-related QoL, yielding separate scores for burnout (BO), secondary traumatic stress (STS) and compassion satisfaction (CS). A descriptive statistical analysis was performed and general estimation equations were modelled. To increase the comparability of the IG and CG, participants were matched by propensity scores.
RESULTS
The 301 participating non-PPC-specialized professionals had overall low to moderate levels of BO and STS and moderate to high levels of CS. However, none of these scores (BO: = 0.36; STS: = 0.20; CS: = 0.65) correlated significantly with support from an SPPC team. Compared to nurses, physicians showed higher levels of BO (1.70; = 0.02) and STS (2.69; ⩽ 0.001).
CONCLUSION
Although the study sample's overall work-related QoL was satisfactory, it showed a considerable proportion of moderate BO and STS, as well as moderate CS. To provide tailored support to professionals working in PPC, evidence regarding key SPPC support elements and their effectiveness is needed.
TRIAL REGISTRATION
ClinicalTrials.gov ID, NCT04236180.
背景
从事儿科姑息治疗（PPC）会影响医疗保健及相关专业人员的工作相关生活质量（QoL）。缺乏PPC专项培训但经常为患病儿童提供服务的专业人员表示，他们需要来自专业PPC（SPPC）团队的支持。
目的
本研究有两个目的：（1）评估SPPC团队的可获得性是否会影响非PPC专业人员的工作相关生活质量；（2）探讨未接受专项培训的PPC专业人员的工作相关生活质量。
设计
重复横断面比较效果设计。
方法
一家设有既定SPPC项目的医院及其附属机构组成干预组（IG）。提供普通PPC服务的三家医院及其附属机构组成对照组（CG）。2021年和2022年通过纸笔问卷收集数据。使用职业生活质量（ProQOL 5）问卷评估工作相关生活质量，得出倦怠（BO）、继发性创伤压力（STS）和同情满足感（CS）的单独得分。进行描述性统计分析并建立一般估计方程。为提高IG和CG的可比性，参与者按倾向得分进行匹配。
结果
301名参与研究的非PPC专业人员的BO和STS总体处于低至中等水平，CS处于中等至高水平。然而，这些得分（BO：=0.36；STS：=0.20；CS：=0.65）均与SPPC团队的支持无显著相关性。与护士相比，医生的BO（1.70；=0.02）和STS（2.69；⩽0.001）水平更高。
结论
尽管研究样本的总体工作相关生活质量令人满意，但仍有相当比例的人存在中度BO和STS，以及中度CS。为了向从事PPC工作的专业人员提供针对性支持，需要有关SPPC关键支持要素及其有效性的证据。
试验注册
ClinicalTrials.gov标识符，NCT04236180。
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