Holmes Carlee, Shields Nora, Morgan Prue, Brock Kim, McKenzie Georgia, Reddihough Dinah
Murdoch Children's Research Institute, Neurodisability and Rehabilitation, Melbourne, VIC, Australia.
St. Vincent's Hospital Melbourne, Melbourne, VIC, Australia.
Disabil Rehabil. 2025 Feb;47(3):609-617. doi: 10.1080/09638288.2024.2353234. Epub 2024 May 16.
The primary aim was to establish feasibility of a home-based motorised cycling intervention in non-ambulant adults with cerebral palsy (CP). The secondary aim was to investigate perceived outcomes on pain, sleep, fatigue, and muscle stiffness.
Non-ambulant adults with CP were recruited from a specialist clinic. Feasibility encompassing recruitment, retention, adherence, acceptability, practicality, and safety, was the primary outcome., Cycling frequency and duration data were downloaded from the device and augmented by a usage diary and participant survey. Participant satisfaction was rated using a 5-point Likert scale where 1 = very satisfied. Quantitative data and open-ended survey responses were analysed using descriptive statistics and content analysis, respectively.
Ten non-ambulant adults with CP (5 female), 18 to 32 years, participated. The median (IQR) days cycled per week was 4 (3,5) with no serious adverse events recorded. The median (IQR) time cycled per session was 13.9 min, (10.2,19.8), per day. Participant satisfaction was high, median (IQR) 2 (1,2.5). Perceived benefits in pain, sleep, fatigue, stiffness, leg function, mood, behaviour, and social interactions were reported alongside occasional problems with spasms and foot placement.
This study provides preliminary data to support the feasibility of motorised cycling for non-ambulant adults with CP.
主要目的是确定对非步行型脑瘫（CP）成人进行家庭电动自行车干预的可行性。次要目的是调查在疼痛、睡眠、疲劳和肌肉僵硬方面的感知结果。
从一家专科诊所招募非步行型CP成人。可行性包括招募、留存率、依从性、可接受性、实用性和安全性，是主要结果。自行车骑行频率和时长数据从设备中下载，并通过使用日记和参与者调查进行补充。参与者满意度使用5分李克特量表进行评分，其中1 = 非常满意。定量数据和开放式调查回复分别使用描述性统计和内容分析进行分析。
10名非步行型CP成人（5名女性），年龄在18至32岁之间，参与了研究。每周骑行的中位数（四分位间距）天数为4（3，5），未记录到严重不良事件。每次骑行的中位数（四分位间距）时间为每天13.9分钟（10.2，19.8）。参与者满意度较高，中位数（四分位间距）为2（1，2.5）。报告了在疼痛、睡眠、疲劳、僵硬、腿部功能、情绪、行为和社交互动方面的感知益处，同时也偶尔出现痉挛和足部放置问题。
本研究提供了初步数据，以支持电动自行车对非步行型CP成人具有可行性。
