Region Västra Götaland, Sahlgrenska University Hospital, Department of Surgery, Gothenburg, Sweden; Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden; Region Västra Götaland, Sahlgrenska University Hospital, Department of Medicine, Gothenburg, Sweden.
Eur J Oncol Nurs. 2024 Jun;70:102613. doi: 10.1016/j.ejon.2024.102613. Epub 2024 May 21.
The purpose of this study was to explore women's experiences with healthcare providers previous to a flat closure after breast cancer.
Data was collected using individual semi-structured interviews by telephone or teleconferencing systems with 18 women who shared their experience with health care before and during flat closure operation after breast cancer or a breast gene mutation. The interviews were transcribed verbatim and analyzed using thematic analysis.
The analysis generated three specific themes: (1) Striving to be recognized as a person, (2) Barriers to shared decision making and (3) A need to be empowered, indicating that women's views are not always illuminated and enquired about by health care providers. The care agenda was also more often regulated by norms and standard care than the individual women's intended goals. Furthermore, when the agenda for surgery had been previously set, the women were not presented with viable options to choose from for the upcoming surgery. For these women to influence the reality they face, they have to seek support outside of healthcare. This indicates the important role of patient networks and relatives in empowering the individual women to stand up for their choice and body.
In order to offer feasible surgery for women diagnosed with breast cancer or a breast mutation gene, the women's wishes regarding flat closure and what matters to her in her life must be identified. Also emphasized is the need for a more systematic approach in involving the affected women in shared decision-making.
本研究旨在探讨女性在乳腺癌根治术后行乳房平坦关闭术之前与医疗保健提供者的经历。
通过电话或远程会议系统对 18 名女性进行了个体半结构化访谈，收集了她们在乳腺癌或乳腺基因突变后进行乳房平坦关闭手术前后的医疗保健经验。访谈内容逐字转录，并使用主题分析进行分析。
分析产生了三个具体主题：（1）努力被视为一个人，（2）共同决策的障碍，（3）需要赋予权力，表明女性的观点并不总是被医疗保健提供者阐明和询问。医疗保健议程也更多地受到规范和标准护理的调节，而不是女性个体的预期目标。此外，当手术议程预先确定时，女性没有被提供可行的选择来为即将进行的手术做出选择。为了让这些女性影响她们所面临的现实，她们必须在医疗保健之外寻求支持。这表明患者网络和亲属在赋予女性为自己的选择和身体挺身而出的权力方面发挥着重要作用。
为了为诊断出患有乳腺癌或乳腺突变基因的女性提供可行的手术，必须确定女性对乳房平坦关闭的愿望以及对她生活重要的事情。还强调需要更系统的方法来让受影响的女性参与共同决策。
