Department of Research and Scholarship, School of Nursing, Columbia University, New York City, NY, USA.
J Cancer Educ. 2024 Dec;39(6):650-662. doi: 10.1007/s13187-024-02448-3. Epub 2024 May 28.
This study examined health information-seeking behavior among cancer survivors, including informational sources used and the factors correlated with information-seeking across different racial/ethnic groups. We used data from the Health Information National Trends Survey (2017-2022). Adjusted logistic regression was conducted to identify the predictors of information-seeking by race/ethnicity. Predicting variables were organized into demographic (age, education, race, income, and comorbidity), enabling (having health insurance, having a regular provider, and frequency of care visits), predisposing (quality of care, self-efficacy, and confidence in one's ability to get information), and reinforcing (patient-centered communication, ease of getting information, and confusing information available) factors based on the PRECEDE-PROCEED Model. We included 4723 cancer survivors, of which 15.41% have breast cancer, 17.50% have skin cancer, and 11.11% have prostate cancer. A majority (75.08%) had sought health information. Healthcare providers were the most preferred sources of information across demographic groups, followed by the Internet. Health insurance, a regular provider, and frequent visits were enabling factors that positively influenced information-seeking behavior. Confidence in getting information when needed and self-efficacy were predisposing factors positively associated with the information-seeking behavior. Finally, reinforcing factors (ease of getting information and non-confusion of the information available) were also positively associated with information-seeking. Study findings suggest that one-fourth of cancer survivors had not sought cancer-related information. The results have implications for identifying patients at increased risk for unmet information needs. They also contribute to our understanding of critical racial differences and similarities. Further, findings can help guide interventions to assist in information seeking based on patient preferences.
本研究考察了癌症幸存者的健康信息寻求行为，包括使用的信息来源以及不同种族/族裔群体与信息寻求相关的因素。我们使用了来自健康信息国家趋势调查（2017-2022 年）的数据。采用调整后的逻辑回归来确定按种族/族裔预测信息寻求的因素。预测变量分为人口统计学因素（年龄、教育程度、种族、收入和合并症）、实现因素（有健康保险、有常规提供者和就诊次数）、倾向因素（医疗质量、自我效能和获取信息能力的信心）和增强因素（以患者为中心的沟通、获取信息的便利性和信息的清晰度），这些因素基于 PRECEDE-PROCEED 模型。我们纳入了 4723 名癌症幸存者，其中 15.41%患有乳腺癌，17.50%患有皮肤癌，11.11%患有前列腺癌。大多数（75.08%）寻求过健康信息。医疗保健提供者是各人群中最受欢迎的信息来源，其次是互联网。健康保险、常规提供者和经常就诊是积极影响信息寻求行为的实现因素。在需要时获取信息的信心和自我效能是与信息寻求行为呈正相关的倾向因素。最后，增强因素（获取信息的便利性和对现有信息的不混淆）也与信息寻求呈正相关。研究结果表明，四分之一的癌症幸存者尚未寻求与癌症相关的信息。这些结果对确定信息需求未得到满足的高危患者具有重要意义。它们也有助于我们理解关键的种族差异和相似性。此外，研究结果可以帮助指导基于患者偏好的干预措施，以协助信息寻求。
