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癌症幸存者与健康对照人群在癌症信息寻求行为、偏好及认知方面的差异:一项基于全国人口的调查。

Differences in cancer information-seeking behavior, preferences, and awareness between cancer survivors and healthy controls: a national, population-based survey.

作者信息

Roach Abbey R, Lykins Emily L B, Gochett Celestine G, Brechting Emily H, Graue Lili O, Andrykowski Michael A

机构信息

Department of Psychology, University of Kentucky, Lexington, KY 40506-0044, USA.

出版信息

J Cancer Educ. 2009;24(1):73-9. doi: 10.1080/08858190802664784.

Abstract

BACKGROUND

No research has examined how cancer diagnosis and treatment might alter information source preferences or opinions.

METHODS

We examined data from 719 cancer survivors (CS group) and 2012 matched healthy controls (NCC group) regarding cancer-related information-seeking behavior, preferences, and awareness from the population-based 2003 Health Information National Trends Survey.

RESULTS

The CS group reported greater consumption of cancer-related information, but the CS and NCC groups did not differ in information source use or preferences. The CS group was more confident of their ability to get cancer information, reported more trust in health care professionals and television as cancer information sources, but evaluated their recent cancer information-seeking experiences more negatively than the NCC group. Awareness of cancer information resources was surprisingly low in both the CS and NCC groups.

CONCLUSIONS

Cancer diagnosis and treatment subtly alters cancer information-seeking preferences and experience. However, awareness and use of cancer information resources was relatively low regardless of personal history of cancer.

摘要

背景

尚无研究探讨癌症诊断和治疗如何改变信息来源偏好或观点。

方法

我们从基于人群的2003年健康信息国家趋势调查中,研究了719名癌症幸存者(CS组)和2012名匹配的健康对照者(NCC组)有关癌症相关信息寻求行为、偏好和认知的数据。

结果

CS组报告对癌症相关信息的消费量更大,但CS组和NCC组在信息来源使用或偏好方面没有差异。CS组对自己获取癌症信息的能力更有信心,报告对医疗保健专业人员和电视作为癌症信息来源的信任度更高,但与NCC组相比,他们对近期癌症信息寻求经历的评价更为负面。CS组和NCC组对癌症信息资源的认知都出奇地低。

结论

癌症诊断和治疗会微妙地改变癌症信息寻求偏好和体验。然而,无论个人癌症病史如何,癌症信息资源的认知和使用都相对较低。

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