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“阿里阿德涅之线”:针对转移性乳腺癌患者的心理教育赋权干预措施

"Ariadne's Thread": Psycho-educational Empowerment Intervention for Patients with Metastatic Breast Cancer.

作者信息

Alfieri S, Murru L, Bosisio M, Gangeri L, Monfredini M, Capri G, Lozza L, Borreani C

机构信息

Clinical Psychology Unit, Fondazione IRCCS Istituto Nazionale Dei Tumori, Milan, Italy.

Medical Oncology 1, Fondazione IRCCS Istituto Nazionale Dei Tumori, Milan, Italy.

出版信息

J Cancer Educ. 2024 Dec;39(6):663-680. doi: 10.1007/s13187-024-02449-2. Epub 2024 May 29.

Abstract

"Ariadne's thread" is a psycho-educational intervention designed by the Breast Unit and the Clinical Psychology Unit of an Italian Comprehensive Cancer Center and aims to promote empowerment in patients with metastatic breast cancer. It consists of 8 online meetings led by a psycho-oncologist in which informative sessions by patients' referring physicians alternate with moments of stress management techniques. This study aims to investigate (1) the feasibility of the "Ariadne's thread" pilot intervention and (2) the satisfaction and perceived benefits of the pilot intervention. We used a mixed method approach in which (1) it was detected: the number of acceptance to the single session of the intervention by both patients and professionals, the number of help requests by patients, and the number of change of date requests by professionals; (2) semi-structured interviews were conducted with the professionals who participated in the intervention; (3) 2 focus groups were conducted with patients, and (4) a questionnaire was submitted to each of them. The intervention is sustainable from the perspective of the organization, professionals, and patients. In particular, the patients declared perceiving benefits in many aspects: improved relationships with doctors, acceptance of their illness, learning of a relaxation technique, possibility to look at the world with trust and hope, etc. The questionnaires show an improvement in empowerment and satisfaction as a result of the intervention. "Ariadne's thread" is a psycho-educational intervention that effectively addresses the needs of patients with MBC. It can be applied to other contexts (1) if it has been confirmed that similar needs exist or (2) if it can be modified to accommodate other needs.

摘要

“阿里阿德涅之线”是意大利一家综合癌症中心的乳腺科和临床心理科设计的一种心理教育干预措施,旨在增强转移性乳腺癌患者的力量感。它由一名心理肿瘤学家主持的8次线上会议组成,患者转诊医生的信息讲解环节与压力管理技巧环节交替进行。本研究旨在调查:(1)“阿里阿德涅之线”试点干预措施的可行性;(2)该试点干预措施的满意度和感知益处。我们采用了混合方法,其中:(1)统计了患者和专业人员对单次干预会议的接受人数、患者的求助请求数量以及专业人员的更改日期请求数量;(2)对参与干预的专业人员进行了半结构化访谈;(3)与患者进行了2次焦点小组讨论;(4)向他们每人发放了一份问卷。从组织、专业人员和患者的角度来看,该干预措施具有可持续性。特别是,患者宣称在许多方面都感受到了益处:与医生的关系改善、对自身疾病的接受、学会了一种放松技巧、能够以信任和希望看待世界等。问卷显示,干预后患者的力量感和满意度有所提高。“阿里阿德涅之线”是一种能有效满足MBC患者需求的心理教育干预措施。如果已确认存在类似需求,或者可以对其进行修改以满足其他需求,那么它可以应用于其他情境。

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