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开发癫痫自我管理移动健康应用程序框架:内容有效性研究结果。

Development of an epilepsy self-management mobile health app framework: Content validity study results.

机构信息

Department of Information Systems, University of Malaya, Kuala Lumpur, Malaysia.

Division of Neurology, Department of Medicine, Faculty of Medicine, University of Malaya, Kuala Lumpur, Malaysia.

出版信息

PLoS One. 2024 Jun 7;19(6):e0302844. doi: 10.1371/journal.pone.0302844. eCollection 2024.

Abstract

BACKGROUND

Mobile health (mHealth) applications (apps) show promise in supporting epilepsy self-management (eSM). To delve deeper into this potential, we conducted a systematic review of epilepsy mHealth apps available on both iOS and Android platforms, examining articles related to eSM. This review allowed us to identify important domains related to eSM. Furthermore, based on the findings, we developed an epilepsy mHealth app framework that aims to improve self-management for the local population. This study aims to assess the practicality and usability of the proposed mHealth app framework designed to improve eSM. We will conduct an expert panel review to evaluate the effectiveness and feasibility of the framework.

MATERIAL AND METHODS

Content validity was assessed by an expert panel comprising epileptologists and pharmacists. The validation process involved scoring the items within each domain of the framework to evaluate their practicality and usability (quantitative component). In addition, a panel discussion was conducted to further explore and discuss the qualitative aspects of the items.

RESULTS

A total of 4 domains with 15 items were highly rated for their practicality and usefulness in eSM.

CONCLUSIONS

The locally validated framework will be useful for developing eSM mobile apps. Seizure Tracking, Medication Adherence, Treatment Management, and Healthcare Communication emerged as the most crucial domains for enhancing eSM.

摘要

背景

移动健康 (mHealth) 应用程序 (apps) 在支持癫痫自我管理 (eSM) 方面显示出巨大的潜力。为了更深入地挖掘这一潜力,我们对 iOS 和 Android 平台上现有的癫痫 mHealth 应用程序进行了系统回顾,研究了与 eSM 相关的文章。这项综述使我们能够确定与 eSM 相关的重要领域。此外,根据研究结果,我们开发了一个癫痫 mHealth 应用程序框架,旨在改善当地人群的自我管理。本研究旨在评估为改善 eSM 而设计的拟议 mHealth 应用程序框架的实用性和可用性。我们将进行专家小组审查,以评估该框架的有效性和可行性。

材料和方法

由癫痫专家和药剂师组成的专家小组对内容的有效性进行评估。验证过程包括对框架每个领域的项目进行评分,以评估其在 eSM 中的实用性和可用性(定量成分)。此外,还进行了小组讨论,以进一步探讨和讨论项目的定性方面。

结果

共有 4 个领域的 15 个项目在 eSM 的实用性和有用性方面得到了高度评价。

结论

经过本地化验证的框架将有助于开发 eSM 移动应用程序。癫痫发作跟踪、药物依从性、治疗管理和医疗保健沟通被确定为增强 eSM 的最关键领域。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a7c4/11161114/47e7c797e080/pone.0302844.g001.jpg

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