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癫痫自我管理移动应用综述。

A review of mobile apps for epilepsy self-management.

作者信息

Escoffery Cam, McGee Robin, Bidwell Jonathan, Sims Christopher, Thropp Eliana Kovitch, Frazier Cherise, Mynatt Elizabeth D

机构信息

Rollins School of Public Health, Emory University, 1518 Clifton Rd, Atlanta, GA 30322, United States.

Rollins School of Public Health, Emory University, 1518 Clifton Rd, Atlanta, GA 30322, United States.

出版信息

Epilepsy Behav. 2018 Apr;81:62-69. doi: 10.1016/j.yebeh.2017.12.010. Epub 2018 Mar 20.

DOI:10.1016/j.yebeh.2017.12.010
PMID:29494935
Abstract

Mobile health app developers increasingly are interested in supporting the daily self-care of people with chronic conditions. The purpose of this study was to review mobile applications (apps) to promote epilepsy self-management. It investigates the following: 1) the available mobile apps for epilepsy, 2) how these apps support patient education and self-management (SM), and 3) their usefulness in supporting management of epilepsy. We conducted the review in Fall 2017 and assessed apps on the Apple App Store that related to the terms "epilepsy" and "seizure". Inclusion criteria included apps (adult and pediatric) that, as follows, were: 1) developed for patients or the community; 2) made available in English, and 3) less than $5.00. Exclusion criteria included apps that were designed for dissemination of publications, focused on healthcare providers, or were available in other languages. The search resulted in 149 apps, of which 20 met the selection criteria. A team reviewed each app in terms of three sets of criteria: 1) epilepsy-specific descriptions and SM categories employed by the apps and 2) Mobile App Rating Scale (MARS) subdomain scores for reviewing engagement, functionality, esthetics, and information; and 3) behavioral change techniques. Most apps were for adults and free. Common SM domains for the apps were treatment, seizure tracking, response, and safety. A number of epilepsy apps existed, but many offered similar functionalities and incorporated few SM domains. The findings underline the need for mobile apps to cover broader domains of SM and behavioral change techniques and to be evaluated for outcomes.

摘要

移动健康应用程序开发者越来越有兴趣支持慢性病患者的日常自我护理。本研究的目的是回顾用于促进癫痫自我管理的移动应用程序(应用)。它调查以下内容:1)现有的癫痫移动应用程序;2)这些应用如何支持患者教育和自我管理(SM);3)它们在支持癫痫管理方面的有用性。我们在2017年秋季进行了这项综述,并评估了苹果应用商店中与“癫痫”和“发作”相关的应用。纳入标准包括如下的应用(成人和儿科):1)为患者或社区开发;2)提供英文版本;3)价格低于5美元。排除标准包括为传播出版物而设计、专注于医疗保健提供者或以其他语言提供的应用。搜索结果有149个应用,其中20个符合选择标准。一个团队根据三组标准对每个应用进行了审查:1)应用采用的癫痫特定描述和SM类别;2)用于审查参与度、功能、美学和信息的移动应用评分量表(MARS)子域得分;3)行为改变技术。大多数应用是针对成年人的且是免费的。这些应用常见的SM领域是治疗、发作跟踪、应对和安全。虽然存在一些癫痫应用,但许多应用提供类似的功能,且纳入的SM领域较少。研究结果强调移动应用需要涵盖更广泛的SM领域和行为改变技术,并对其结果进行评估。

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