Department of Psychiatry and Psychotherapy, Center for Mental Health, Immanuel Hospital Rüdersdorf, Brandenburg Medical School Theodor Fontane, Seebad 82/83, Rüdersdorf, DE, Germany.
Faculty of Health Sciences Brandenburg, Brandenburg Medical School, Neuruppin, Germany.
BMC Psychiatry. 2024 Jun 10;24(1):430. doi: 10.1186/s12888-024-05845-6.
OBJECTIVE: In a growing list of countries, patients are granted access to their clinical notes ("open notes") as part of their online record access. Especially in the field of mental health, open notes remain controversial with some clinicians perceiving open notes as a tool for improving therapeutic outcomes by increasing patient involvement, while others fear that patients might experience psychological distress and perceived stigmatization, particularly when reading clinicians' notes. More research is needed to optimize the benefits and mitigate the risks. METHODS: Using a qualitative research design, we conducted semi-structured interviews with psychiatrists practicing in Germany, to explore what conditions they believe need to be in place to ensure successful implementation of open notes in psychiatric practice as well as expected subsequent changes to their workload and treatment outcomes. Data were analyzed using thematic analysis. RESULTS: We interviewed 18 psychiatrists; interviewees believed four key conditions needed to be in place prior to implementation of open notes including careful consideration of (1) diagnoses and symptom severity, (2) the availability of additional time for writing clinical notes and discussing them with patients, (3) available resources and system compatibility, and (4) legal and data protection aspects. As a result of introducing open notes, interviewees expected changes in documentation, treatment processes, and doctor-physician interaction. While open notes were expected to improve transparency and trust, participants anticipated negative unintended consequences including the risk of deteriorating therapeutic relationships due to note access-related misunderstandings and conflicts. CONCLUSION: Psychiatrists practiced in Germany where open notes have not yet been established as part of the healthcare data infrastructure. Interviewees were supportive of open notes but had some reservations. They found open notes to be generally beneficial but anticipated effects to vary depending on patient characteristics. Clear guidelines for managing access, time constraints, usability, and privacy are crucial. Open notes were perceived to increase transparency and patient involvement but were also believed to raise issues of stigmatization and conflicts.
目的:在越来越多的国家,患者可以在线访问其临床记录(“开放笔记”)。特别是在精神卫生领域,开放笔记仍然存在争议,一些临床医生认为开放笔记可以通过增加患者的参与度来改善治疗效果,而另一些医生则担心患者可能会感到心理困扰和被污名化,尤其是在阅读临床医生的笔记时。需要进一步研究以优化其益处并降低风险。
方法:采用定性研究设计,我们对在德国执业的精神科医生进行了半结构化访谈,以探讨他们认为需要具备哪些条件才能确保在精神科实践中成功实施开放笔记,以及预期对其工作量和治疗结果的后续变化。使用主题分析对数据进行分析。
结果:我们采访了 18 名精神科医生;受访者认为,在实施开放笔记之前,需要满足四个关键条件,包括仔细考虑(1)诊断和症状严重程度,(2)有足够的时间撰写临床笔记并与患者讨论,(3)可用资源和系统兼容性,以及(4)法律和数据保护方面。由于引入了开放笔记,受访者预计文档、治疗过程和医患互动会发生变化。尽管开放笔记有望提高透明度和信任度,但参与者预计会出现一些意想不到的负面影响,包括由于与笔记访问相关的误解和冲突,导致治疗关系恶化的风险。
结论:德国的精神科医生在那里,开放笔记尚未成为医疗数据基础设施的一部分。受访者支持开放笔记,但也有一些保留意见。他们认为开放笔记通常是有益的,但预期效果会因患者特征而异。管理访问权限、时间限制、可用性和隐私的明确指南至关重要。开放笔记被认为增加了透明度和患者参与度,但也被认为引发了污名化和冲突问题。
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