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本文引用的文献

1
Quality of life and stigmatization in people with skin diseases in Europe: A large survey from the 'burden of skin diseases' EADV project.欧洲皮肤病患者的生活质量与污名化:来自“皮肤病负担”欧洲皮肤病与性病学会项目的一项大型调查
J Eur Acad Dermatol Venereol. 2023 Oct;37 Suppl 7:6-14. doi: 10.1111/jdv.18917.
2
Investigating the Role of Upward Comparisons and Self-compassion on Stigma in People With Acne: Cross-sectional Study.探究向上比较和自我同情在痤疮患者耻辱感中的作用:横断面研究
JMIR Dermatol. 2023 Apr 12;6:e45368. doi: 10.2196/45368.
3
Perceived Stigmatization among Dermatological Outpatients Compared with Controls: An Observational Multicentre Study in 17 European Countries.皮肤科门诊患者与对照者感知的污名化比较:17 个欧洲国家的观察性多中心研究。
Acta Derm Venereol. 2023 Jun 22;103:adv6485. doi: 10.2340/actadv.v103.6485.
4
Burden of visible [face and hands] skin diseases: Results from a large international survey.可见(面部和手部)皮肤病负担:一项大型国际调查的结果。
Ann Dermatol Venereol. 2023 Jun;150(2):95-100. doi: 10.1016/j.annder.2022.11.008. Epub 2023 Jan 16.
5
Internalized-stigma and dissociative experiences in bipolar disorder.双相情感障碍中的内化耻辱感和解离体验。
Front Psychiatry. 2022 Jul 29;13:953621. doi: 10.3389/fpsyt.2022.953621. eCollection 2022.
6
Internalized stigma in acne vulgaris and its relationship with quality of life, general health, body perception, and depression.寻常痤疮中的内化耻辱感及其与生活质量、总体健康、身体认知和抑郁的关系。
Niger J Clin Pract. 2020 Sep;23(9):1289-1294. doi: 10.4103/njcp.njcp_86_20.
7
Self-rated health as a valid indicator for health-equity analyses: evidence from the Italian health interview survey.自评健康作为健康公平分析的有效指标:来自意大利健康访谈调查的证据。
BMC Public Health. 2019 May 9;19(1):533. doi: 10.1186/s12889-019-6839-5.
8
Stigma predicts health-related quality of life impairment, psychological distress, and somatic symptoms in acne sufferers.耻辱感可预测痤疮患者的健康相关生活质量受损、心理困扰和躯体症状。
PLoS One. 2018 Sep 28;13(9):e0205009. doi: 10.1371/journal.pone.0205009. eCollection 2018.
9
Stigmatization in dermatology with a special focus on psoriatic patients.皮肤科中的污名化,特别关注银屑病患者。
Postepy Hig Med Dosw (Online). 2017 Dec 11;71(0):1115-1122. doi: 10.5604/01.3001.0010.6879.
10
Updating the diagnosis, classification and assessment of rosacea: recommendations from the global ROSacea COnsensus (ROSCO) panel.更新酒渣鼻的诊断、分类和评估:来自全球酒渣鼻共识(ROSCO)小组的建议。
Br J Dermatol. 2017 Feb;176(2):431-438. doi: 10.1111/bjd.15122. Epub 2017 Jan 23.

酒渣鼻和寻常痤疮患者内化耻辱感及其与生活质量和感知健康状况的关系:一项比较横断面研究

Internalized Stigma and Its Relationship With Quality of Life and Perceived Health Status in Rosacea and Acne Vulgaris: A Comparative Cross-Sectional Study.

作者信息

Kıratlı Nalbant Esra, İmren Işıl Göğem, Tas Dolek Gamze

机构信息

Dermatology, Ankara Yildirim Beyazıt University, Faculty of Medicine, Ankara, TUR.

Dermatology, Denizli State Hospital, Denizli, TUR.

出版信息

Cureus. 2024 May 21;16(5):e60731. doi: 10.7759/cureus.60731. eCollection 2024 May.

DOI:10.7759/cureus.60731
PMID:38903377
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11187619/
Abstract

Background Internalized stigma (IS) is the acceptance of unfavorable stereotypes about the disease that society has created and withdrawing from society with feelings of shame and worthlessness. Due to the visibility feature of facial skin diseases such as rosacea and acne vulgaris (AV), it is possible for them to cause IS. Objective We aimed to examine the level of IS in AV and rosacea patients and compare these patient groups as well. Methods Fifty-three AV and 46 rosacea patients aged 18-65 were included in this study. Internalized Stigma Scale (ISS) adapted for AV and rosacea were applied to all the patients. They also responded to the "Dermatology Life Quality Index" (DLQI) questionnaire. The relationship between IS levels and DLQI was investigated, and then acne and rosacea patients were compared with each other. Results Total DLQI, total ISS, and its subscales' scores of all patients were found to be positively correlated with each other. When rosacea and AV patients were compared with each other, there was no difference regarding DLQI and ISS scores. Conclusion AV and rosacea patients experience high IS, and it is significantly related to low quality of life and health status. They also have similar IS levels when compared with each other.

摘要

背景 内化耻辱感(IS)是指接受社会对疾病所形成的负面刻板印象,并带着羞耻感和无价值感退出社会。由于酒渣鼻和寻常痤疮(AV)等面部皮肤病的可见性特征,它们有可能导致内化耻辱感。目的 我们旨在研究寻常痤疮和酒渣鼻患者的内化耻辱感水平,并对这些患者群体进行比较。方法 本研究纳入了53例年龄在18至65岁之间的寻常痤疮患者和46例酒渣鼻患者。对所有患者应用了适用于寻常痤疮和酒渣鼻的内化耻辱感量表(ISS)。他们还对“皮肤病生活质量指数”(DLQI)问卷进行了回答。研究了内化耻辱感水平与DLQI之间的关系,然后对痤疮患者和酒渣鼻患者进行了相互比较。结果 发现所有患者的DLQI总分、ISS总分及其各子量表得分均呈正相关。当酒渣鼻患者和寻常痤疮患者相互比较时,DLQI和ISS得分没有差异。结论 寻常痤疮和酒渣鼻患者经历着较高的内化耻辱感,且这与低生活质量和健康状况显著相关。相互比较时,他们的内化耻辱感水平也相似。