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智力和发育障碍儿童的家庭:与家庭生活质量相关的变量

Families of Children with Intellectual and Developmental Disabilities: Variables Associated with Family Quality of Life.

作者信息

Alnahdi Ghaleb H, Schwab Susanne

机构信息

Special Education Department, College of Education, Prince Sattam bin Abdulaziz University, Al-Kharj 11942, Saudi Arabia.

Centre for Teacher Education, Department of Education, University of Vienna, 1010 Vienna, Austria.

出版信息

Children (Basel). 2024 Jun 15;11(6):734. doi: 10.3390/children11060734.

Abstract

UNLABELLED

Families of children with intellectual and developmental disabilities often face unique challenges that significantly impact their quality of life. Understanding the predictors of family quality of life (FQOL) is crucial for developing effective support systems and interventions.

AIM

This study investigated the predictors that might influence the perception of families having a member with a disability regarding their quality of life (FQOL).

METHOD

The sample consisted of 320 family members from the Riyadh region of Saudi Arabia.

RESULTS

The overall results showed that participants' satisfaction with FQOL was at a moderate level. Further results indicated that variables associated with severity, type of disability, and the mother's age and education were significant predictors of the FQOL.

CONCLUSIONS

These results emphasize the importance of considering the variables that impact FQOL, such as the severity and type of disability, and mother's related variables, when directing support to families with a member with a disability. The recommendations and limitations of the study were discussed.

摘要

未标注

智力和发育障碍儿童的家庭通常面临独特的挑战,这些挑战会显著影响他们的生活质量。了解家庭生活质量(FQOL)的预测因素对于开发有效的支持系统和干预措施至关重要。

目的

本研究调查了可能影响有残疾成员家庭对其生活质量(FQOL)认知的预测因素。

方法

样本包括来自沙特阿拉伯利雅得地区的320名家庭成员。

结果

总体结果显示,参与者对FQOL的满意度处于中等水平。进一步结果表明,与严重程度、残疾类型以及母亲的年龄和教育程度相关的变量是FQOL的重要预测因素。

结论

这些结果强调了在为有残疾成员的家庭提供支持时,考虑影响FQOL的变量的重要性,如残疾的严重程度和类型以及母亲的相关变量。讨论了该研究的建议和局限性。

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本文引用的文献

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Family quality of life of Chinese families of children with intellectual disabilities.中国智力残疾儿童家庭的生活质量。
J Intellect Disabil Res. 2012 Jan;56(1):30-44. doi: 10.1111/j.1365-2788.2011.01391.x. Epub 2011 Mar 3.
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Family quality of life: a qualitative inquiry.家庭生活质量:一项质性探究。
Ment Retard. 2003 Oct;41(5):313-28. doi: 10.1352/0047-6765(2003)41<313:FQOLAQ>2.0.CO;2.

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