Thomas L. Boehm, Wheaton College; and Erik W. Carter, Vanderbilt University.
Am J Intellect Dev Disabil. 2019 Mar;124(2):99-115. doi: 10.1352/1944-7558-124.2.99.
All families, including those impacted by disability, desire and deserve opportunities for high quality of life. This study focused on family quality of life (FQOL) among 529 parents with children or adults with intellectual disability (ID). Parents reported moderate to high levels of FQOL satisfaction, with some variability across domains. We conducted hierarchical linear regression analyses to examine associations among FQOL and: (1) individual and family demographic factors, (2) religiosity/spirituality factors, and (3) relationship factors. Findings highlighted the significance of both informal (i.e., family, friends) and formal (i.e., professional) social relationships, as well as the relevance of spirituality/religiosity, as factors contributing to FQOL. We offer recommendations for research and practice aimed at enhancing FQOL of parents with children and adults who have ID.
所有家庭，包括那些受到残疾影响的家庭，都渴望并应得高质量的生活。本研究关注 529 名有智力障碍儿童或成人的父母的家庭生活质量（FQOL）。父母报告了中等到高水平的 FQOL 满意度，在不同领域存在一定的差异。我们进行了层次线性回归分析，以研究 FQOL 与以下因素之间的关联：（1）个人和家庭人口统计学因素，（2）宗教/精神信仰因素，以及（3）关系因素。研究结果强调了非正式（即家庭、朋友）和正式（即专业）社会关系的重要性，以及精神信仰/宗教的相关性，这些都是影响 FQOL 的因素。我们为旨在提高有智力障碍儿童或成人的父母的 FQOL 的研究和实践提供了建议。
