Bakry Mohamed, Hoffmann Peta, Prematunga Rajivi, Keightley Philip, Subramaniam Kavitha
Canberra Health Services, Canberra, ACT, Australia.
Acute Allied Health Psychology Department, Canberra Health Services, Canberra, ACT, Australia.
Gastroenterology Res. 2024 Jun;17(3):146-149. doi: 10.14740/gr1724. Epub 2024 Jun 29.
Inflammatory bowel disease (IBD) often has its onset during late childhood and adolescence, a time of significant change. Young people may be required to transition from a pediatric to an adult IBD service during this time. The transition from pediatric to adult services can be a high-risk period for poor outcomes for emerging adults with IBD. We seek to understand the concerns of patients and carers during this period.
Semi-structured interview and interpretative phenomenological analysis were used to explore the experiences of 16 young persons and 10 of their parents during transition.
The narrative analysis reflected the importance of three aspects of transition to the young people and their parents during transition. The process of adjusting to illness, parents letting go, and the young person "growing up" were key themes.
In addition to patient needs, parental grief and adjustment may be easily overlooked in the transition period: children who only recently needed intensive parental care and involvement may now be seeking higher degrees of autonomy. These findings indicate a role for including psychological interventions addressing the well-being of parents in transition programs.
炎症性肠病（IBD）通常在儿童晚期和青春期发病，这是一个发生重大变化的时期。在此期间，年轻人可能需要从儿科IBD服务过渡到成人IBD服务。对于患有IBD的新兴成年人来说，从儿科服务过渡到成人服务可能是一个结局不佳的高风险时期。我们试图了解患者及其照顾者在此期间的担忧。
采用半结构化访谈和解释现象学分析，以探究16名年轻人及其10名父母在过渡期间的经历。
叙事分析反映了过渡对年轻人及其父母的三个重要方面。适应疾病的过程、父母放手以及年轻人“长大”是关键主题。
在过渡时期，除了患者的需求外，父母的悲伤和适应可能很容易被忽视：那些最近还需要父母密集照顾和参与的孩子现在可能正在寻求更高程度的自主权。这些发现表明，在过渡计划中纳入针对父母幸福感的心理干预措施具有重要意义。
