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面部移植候选人是自主做出选择的吗?一种在心理社会和生物伦理评估中评估自主选择的初步方法。

Are face transplant candidates choosing autonomously? A preliminary method to evaluate autonomous choosing in psychosocial and bioethical assessments.

作者信息

Farías-Yapur Anneke

机构信息

Interdisciplinary Center for Bioethics, Universidad Panamericana, Mexico City, Mexico.

出版信息

Front Transplant. 2024 Feb 27;3:1346667. doi: 10.3389/frtra.2024.1346667. eCollection 2024.

DOI:10.3389/frtra.2024.1346667
PMID:38993750
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11235316/
Abstract

This report proposes a framework for evaluating the validity of informed consent and autonomy in face transplant candidates, taking into account the risk of depression and non-compliance. Traditional factors like decisional capacity, disclosure, comprehension, voluntariness, and agreement are insufficient for assessing valid informed consent in individuals whose self-worth relies on public perception, potentially leading to self-harm if societal worth is undermined. Reliance on self-esteem, rather than inherent personal value, poses risks of depression, poor treatment adherence, and deferential vulnerability. We suggest a qualitative analysis of self-worth, self-esteem, self-trust, and self-respect to better assess the autonomy of face transplant candidates in their decision-making process.

摘要

本报告提出了一个框架,用于评估面部移植候选者知情同意和自主性的有效性,同时考虑到抑郁和不依从的风险。诸如决策能力、信息披露、理解、自愿性和同意等传统因素,不足以评估那些自我价值依赖于公众认知的个体的有效知情同意,因为如果社会价值受到损害,可能会导致自我伤害。依赖自尊而非内在个人价值,存在抑郁、治疗依从性差和顺从性脆弱等风险。我们建议对面部移植候选者的自我价值、自尊、自我信任和自尊进行定性分析,以更好地评估他们在决策过程中的自主性。

相似文献

1
Are face transplant candidates choosing autonomously? A preliminary method to evaluate autonomous choosing in psychosocial and bioethical assessments.面部移植候选人是自主做出选择的吗?一种在心理社会和生物伦理评估中评估自主选择的初步方法。
Front Transplant. 2024 Feb 27;3:1346667. doi: 10.3389/frtra.2024.1346667. eCollection 2024.
2
Corrigendum: Are face transplant candidates choosing autonomously? A preliminary method to evaluate autonomous choosing in psychosocial and bioethical assessments.勘误:面部移植候选人是在自主选择吗?一种在社会心理和生物伦理评估中评估自主选择的初步方法。
Front Transplant. 2024 Jun 14;3:1433414. doi: 10.3389/frtra.2024.1433414. eCollection 2024.
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本文引用的文献

1
The reality of informed consent: empirical studies on patient comprehension-systematic review.知情同意的现实:患者理解的实证研究-系统评价。
Trials. 2021 Jan 14;22(1):57. doi: 10.1186/s13063-020-04969-w.
2
First human facial retransplantation: 30-month follow-up.首例人类面部再移植:30 个月随访结果。
Lancet. 2020 Nov 28;396(10264):1758-1765. doi: 10.1016/S0140-6736(20)32438-7.
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The Ethics of Facial Allotransplantation: A Systematic Review.面部同种异体移植的伦理学:一项系统评价
Plast Reconstr Surg Glob Open. 2019 Oct 31;7(10):e2425. doi: 10.1097/GOX.0000000000002425. eCollection 2019 Oct.
4
Low Self-Esteem and Its Association With Anxiety, Depression, and Suicidal Ideation in Vietnamese Secondary School Students: A Cross-Sectional Study.越南中学生的低自尊及其与焦虑、抑郁和自杀意念的关联:一项横断面研究。
Front Psychiatry. 2019 Sep 27;10:698. doi: 10.3389/fpsyt.2019.00698. eCollection 2019.
5
A review of the world's published face transplant cases: ethical perspectives.全球已发表的面部移植病例综述:伦理视角
Scars Burn Heal. 2017 Mar 21;3:2059513117694402. doi: 10.1177/2059513117694402. eCollection 2017 Jan-Dec.
6
From to the face race: the case of Isabelle Dinoire and the future of the face transplant.从面部移植竞赛:以伊莎贝尔·迪诺尔的案例及面部移植的未来为例。 (你提供的原文“From to the face race”表述不太准确规范,可能影响理解,推测是“From the face race”之类的,但按你要求直接翻译了。)
Med Humanit. 2017 Sep;43(3):148-154. doi: 10.1136/medhum-2016-011113. Epub 2016 Dec 9.
7
Standardizing psychosocial assessment for vascularized composite allotransplantation.规范血管化复合组织异体移植的心理社会评估
Curr Opin Organ Transplant. 2016 Oct;21(5):530-5. doi: 10.1097/MOT.0000000000000351.
8
Anxiety and Shame as Risk Factors for Depression, Suicidality, and Functional Impairment in Body Dysmorphic Disorder and Obsessive Compulsive Disorder.焦虑和羞耻作为躯体变形障碍和强迫症中抑郁、自杀倾向及功能损害的风险因素。
J Nerv Ment Dis. 2016 Nov;204(11):832-839. doi: 10.1097/NMD.0000000000000498.
9
Psychosocial factors and adherence to drug treatment in patients on chronic haemodialysis.慢性血液透析患者的心理社会因素与药物治疗依从性
Nefrologia. 2014 Nov 17;34(6):737-42. doi: 10.3265/Nefrologia.pre2014.Jul.12477.
10
Facial transplantation.面部移植
Curr Opin Otolaryngol Head Neck Surg. 2012 Aug;20(4):291-7. doi: 10.1097/MOO.0b013e3283552cc5.