Cleveland Clinic, Division of Pediatric Gastroenterology, Hepatology and Nutrition, Cleveland, OH, USA.
Stanford Medicine Children's Health Division of Gastroenterology, Hepatology, and Nutrition, Palo Alto, CA, USA.
Curr Gastroenterol Rep. 2024 Oct;26(10):255-262. doi: 10.1007/s11894-024-00936-6. Epub 2024 Jul 16.
Transition of care for pediatric patients with inflammatory bowel diseases (IBD) is a continuous, dynamic process that takes place over several years with a coordinated approach executed by a multidisciplinary team. We review the concepts, tools, and research in effective transitioning and transfer of care for adolescent/young adult patients with IBD.
Given the constraints within the healthcare system, effective transitioning can be challenging to implement in everyday clinical practice. Different barriers include resources and expertise in effective transitioning by pediatric and adult gastroenterology healthcare providers and the impact of non-gastrointestinal issues facing young adult patients who are learning to manage and coordinate all aspects of their medical care and health maintenance. Factors that facilitate successful care transitioning and transfer include structured transitioning programs, utilization of validated transition checklists, and IBD medical summaries. Proactive transitioning by pediatric gastroenterologists in partnership with their emerging young adult patients with IBD leads to better clinical and psychosocial outcomes and ultimately, effective transfer of care to adult gastroenterology. By utilizing utilize comprehensive transition assessment tools and medical summaries in partnership with their patients, pediatric and adult gastroenterology teams can better prepare patients as they transfer to independent care and health maintenance.
儿科炎症性肠病（IBD）患者的治疗过渡是一个持续的、动态的过程，需要由多学科团队以协调的方式进行，历时数年。我们综述了青少年/年轻成人 IBD 患者有效过渡和治疗转移的概念、工具和研究。
考虑到医疗体系的限制，在日常临床实践中实施有效的过渡具有挑战性。儿科和成人胃肠病学医护人员在有效过渡方面的资源和专业知识不足，以及年轻成年患者在学习管理和协调其医疗和健康维护的所有方面时面临的非胃肠道问题，都对其造成了影响。有助于成功治疗过渡和转移的因素包括有组织的过渡计划、使用经过验证的过渡检查表和 IBD 医疗摘要。儿科胃肠病学家与即将成年的 IBD 患者积极合作进行过渡，可以带来更好的临床和心理社会结局，并最终实现向成人胃肠病学的有效治疗转移。通过与患者合作利用全面的过渡评估工具和医疗摘要，儿科和成人胃肠病学团队可以在患者过渡到独立的医疗和健康维护时更好地进行准备。
