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评价 COVID-19 大流行期间 1 型糖尿病青少年的自我护理能力与生活质量之间的关系。

Evaluation of the relationship between self-care agency and quality of life in adolescents with type 1 diabetes mellitus during COVID-19 pandemic.

机构信息

Dr Sami Ulus Children's Health and Diseases Training and Research Hospital, Ankara, Turkey.

Zonguldak Bülent Ecevit University, Faculty of Health Sciences, Dept. of Nursing, Kozlu-Zonguldak, Turkey.

出版信息

J Pediatr Nurs. 2024 Sep-Oct;78:e236-e243. doi: 10.1016/j.pedn.2024.07.011. Epub 2024 Jul 16.

Abstract

PURPOSE

This study aims to explore the relationship between self-care agency and quality of life among adolescents with Type 1 Diabetes Mellitus (T1DM) during the pandemic.

DESIGN AND METHODS

The study was conducted with 186 adolescents aged 13-16 who have T1DM and attended a pediatric endocrinology clinic at a Training and Research Hospital in the capital city of Turkey between January 1, 2022, and December 31, 2022. Data from 118 adolescents who met the inclusion criteria and fully completed the survey were used in the analysis. Data were collected using the 'Participant Information Form', 'Self-Care Agency Scale', and 'Kiddo-KINDL Quality of Life Scale'.

RESULTS

The study found that adolescents with higher self-care agency reported significantly better quality of life. Additionally, significant correlations were observed between self-care agency and adherence to pandemic measures, dietary adjustments, hygiene practices, diabetes management challenges, family communication, sleep duration, dietary patterns, and exercise difficulties (p < 0.05).

CONCLUSION

During the COVID-19 pandemic, it was evident that the self-care agency and quality of life of adolescents with T1DM were impacted, with those possessing higher self-care agency experiencing better and more meaningful quality of life.

APPLICATION TO PRACTICE

T1DM affects all aspects of life, and quality of life is considered a critical outcome of diabetes care. It is essential for adolescents to adhere to practices such as regular nutrition, physical activity, blood sugar monitoring, and appropriate insulin intake to achieve optimal glycemic levels and the best possible quality of life. Adolescents should be trained on these issues by pediatric nurses.

摘要

目的

本研究旨在探讨大流行期间 1 型糖尿病青少年自我护理能力与生活质量之间的关系。

设计与方法

本研究纳入了 2022 年 1 月 1 日至 12 月 31 日期间在土耳其首都一家培训和研究医院儿科内分泌科就诊的 186 名 13-16 岁的 1 型糖尿病青少年。共纳入了 118 名符合纳入标准且完成了全部调查的青少年。使用“参与者信息表”、“自我护理能力量表”和“Kiddo-KINDL 生活质量量表”收集数据。

结果

研究发现,自我护理能力较高的青少年报告生活质量显著提高。此外,自我护理能力与遵守大流行措施、饮食调整、卫生习惯、糖尿病管理挑战、家庭沟通、睡眠时长、饮食模式和运动困难之间存在显著相关性(p<0.05)。

结论

在 COVID-19 大流行期间,1 型糖尿病青少年的自我护理能力和生活质量受到了明显影响,自我护理能力较高的青少年体验到了更好和更有意义的生活质量。

应用于实践

1 型糖尿病影响生活的各个方面,生活质量被认为是糖尿病护理的关键结果。青少年需要遵循定期营养、体育活动、血糖监测和适当胰岛素摄入等实践,以达到最佳血糖水平和尽可能好的生活质量。儿科护士应就这些问题对青少年进行培训。

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